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Recent advancements in gene and cell therapies offer new options to patients with severe, hereditary and understudied blood diseases. Exciting as this development is, it is crucial to study the social and ethical aspects of these therapies, and ensure they align with patient needs. As part of the TRACER consortium, I am conducting qualitative research in this subject under the supervision of sociologist Prof. Dr. Eva-Maria Merz and ethicist Dr. Jeantine Lunshof.
Academic qualification
Teaching Social Sciences and Humanities in Secondary Education, Master, Universiteit van Amsterdam
Award Date: 30 Jun 2022
Master Social Sciences (research), Master, Universiteit van Amsterdam
Award Date: 17 Aug 2021
Cultural Anthropology and Development Sociology, Bachelor, Universiteit van Amsterdam
Award Date: 29 Jun 2018
Keywords
- GN Anthropology
- RA Public aspects of medicine
- L Education (General)
- BJ Ethics
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Collaborations and top research areas from the last five years
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Building awareness: Introducing education about blood-product donation in the school curriculum
Ciaușescu, A., Schröder, J. M., van Hooff, L. & Merz, E. M., Apr 2025, In: Transfusion. 65, 4, p. 750-757 8 p.Research output: Contribution to Journal › Comment / Letter to the editor › Academic
Open Access -
Balancing benefits and burdens: a systematic review on ethical and social dimensions of gene and cell therapies for hereditary blood diseases
van Hooff, L. C., Merz, E.-M., Gebremeskel, A. S. K., de Jong, J. A., Burchell, G. L. & Lunshof, J. E., 2025, In: BMC medical ethics. 26, 1, p. 1-15 15 p., 36.Research output: Contribution to Journal › Review article › Academic › peer-review
Open Access -
On Futures: Multi-Modal Reflections on Studying the Anthropology of the Future
Baas, S., van Hooff, L., Koopman, W., Lopez, A. M., McBrien, J. & Veenhoven, N., Jul 2020, In: Etnofoor. 23, 1Research output: Contribution to Journal › Article › Academic › peer-review