Project Details
Description
International (global) group of researchers in the field of studies on siblings of persons with chronic conditions. Aims are to review existing concepts and scales that are used in sibling studies and to develop a new scale that measures sibling-specific experiences. In addition, the group facilitates international exchange on knowledge and resources for siblings.
| Status | Active |
|---|---|
| Effective start/end date | 8/05/25 → … |
Collaborative partners
- Vrije Universiteit Amsterdam (lead)
- University of Oslo
- Frambu Resource Center for Rare Disorders
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