TY - JOUR
T1 - Alternative treatments for autism: Prevalence and predictors
AU - Jonkman, Kim M.
AU - Back, Elisa
AU - Staal, Wouter G.
AU - Benard, Lotte
AU - van der Doelen, Daniël M.
AU - Begeer, Sander
N1 - Funding Information:
The current studies were the result of a school project by Elijah Delsink, a 17-year-old autistic person, who relentlessly fights to reduce misinformation and increase inclusivity for autistic individuals. Results from these studies have partially been published in Jonkman et al. (2021) . This study was funded by a ZonMW Research grant (The Netherlands) [ 63634000 ], by the Senior Research Advancement Fund/Research Development Allowance, School of Law, Social and Behavioural Sciences, Faculty of Business and Social Sciences, Kingston University(United Kingdom) and by funding from the Dutch Ministry of Health, Welfare and Sport (VWS) 16–4067-26061 . We have no known conflict of interest to disclose.
Publisher Copyright:
© 2022 The Authors
PY - 2022/10
Y1 - 2022/10
N2 - Autism is a heterogeneous neurodevelopmental disorder for which a large variety of treatments are offered, including alternative treatments. Vaccine-related treatments (treatments falsely claiming to cure autism by addressing its alleged cause: routine childhood vaccines such as MMR) continue to be offered worldwide, despite widespread evidence against the effectiveness and even possible harm related to these treatments. We analysed the use of alternative treatments in two studies: a survey study (N = 1989, autistic adults and parents/legal representatives of individuals with autism) and a clinical care study (N = 4520, patient files from a treatment center for autism). Both studies found a relatively high frequency of alternative treatments (23.0–30.7%) – in children even 46.4% -, mostly in combination with mainstream treatment. In the survey study vaccine-related treatments were used by 3.2% of all individuals with autism (and 6.7% of autistic children), and alternative treatment use was predicted by co-occurring diagnoses, younger age of diagnosis and mainstream treatment use. In the clinical care study, patients who had received treatment from a homeo-/osteopath more often had highly educated parents from Dutch/Western background and were more often enrolled in special education. Alternative treatments are widely used and should be included in treatment guidelines. Parents, practitioners and individuals with autism should be both advised and warned about the benefits and risks of these treatments. More research is needed to better understand the choice for and effect of alternative treatments for autism, and mainstream care should be improved.
AB - Autism is a heterogeneous neurodevelopmental disorder for which a large variety of treatments are offered, including alternative treatments. Vaccine-related treatments (treatments falsely claiming to cure autism by addressing its alleged cause: routine childhood vaccines such as MMR) continue to be offered worldwide, despite widespread evidence against the effectiveness and even possible harm related to these treatments. We analysed the use of alternative treatments in two studies: a survey study (N = 1989, autistic adults and parents/legal representatives of individuals with autism) and a clinical care study (N = 4520, patient files from a treatment center for autism). Both studies found a relatively high frequency of alternative treatments (23.0–30.7%) – in children even 46.4% -, mostly in combination with mainstream treatment. In the survey study vaccine-related treatments were used by 3.2% of all individuals with autism (and 6.7% of autistic children), and alternative treatment use was predicted by co-occurring diagnoses, younger age of diagnosis and mainstream treatment use. In the clinical care study, patients who had received treatment from a homeo-/osteopath more often had highly educated parents from Dutch/Western background and were more often enrolled in special education. Alternative treatments are widely used and should be included in treatment guidelines. Parents, practitioners and individuals with autism should be both advised and warned about the benefits and risks of these treatments. More research is needed to better understand the choice for and effect of alternative treatments for autism, and mainstream care should be improved.
KW - Autism spectrum disorder
KW - Complementary and alternative medicine
KW - Complementary health approaches
UR - https://www.scopus.com/pages/publications/85138067643
UR - https://www.scopus.com/inward/citedby.url?scp=85138067643&partnerID=8YFLogxK
U2 - 10.1016/j.rasd.2022.102046
DO - 10.1016/j.rasd.2022.102046
M3 - Article
AN - SCOPUS:85138067643
SN - 1750-9467
VL - 98
SP - 1
EP - 11
JO - Research in autism spectrum disorders
JF - Research in autism spectrum disorders
M1 - 102046
ER -