TY - JOUR
T1 - An online self-care education program to support patients after total laryngectomy: feasibility and satisfaction
AU - Cnossen, Ingrid C
AU - van Uden-Kraan, Cornelia F.
AU - Eerenstein, Simone E J
AU - Jansen, Femke
AU - Witte, Birgit I.
AU - Lacko, Martin
AU - Hardillo, José A U
AU - Honings, Jimmie
AU - Halmos, Gyorgy B
AU - Goedhart-Schwandt, Noortje L Q
AU - de Bree, Remco
AU - Leemans, C René
AU - Leeuw, Irma M Verdonck de
PY - 2015/8/26
Y1 - 2015/8/26
N2 - PURPOSE: The purpose of this study was to investigate the feasibility of an online self-care education program supporting early rehabilitation of patients after total laryngectomy (TLPs) and factors associated with satisfaction.METHODS: Health care professionals (HCPs) were invited to participate and to recruit TLPs. TLPs were informed on the self-care education program "In Tune without Cords" (ITwC) after which they gained access. A study specific survey was used (at baseline T0 and postintervention T1) on TLPs' uptake. Usage, satisfaction (general impression, willingness to use, user-friendliness, satisfaction with self-care advice and strategies, Net Promoter Score (NPS)), sociodemographic, and clinical factors were analyzed.RESULTS: HCPs of 6 out of 9 centers (67% uptake rate) agreed to participate and recruited TLPs. In total, 55 of 75 TLPs returned informed consent and the baseline T0 survey and were provided access to ITwC (73% uptake rate). Thirty-eight of these 55 TLPs used ITwC and completed the T1 survey (69% usage rate). Most (66%) TLPs were satisfied (i.e., score ≥7 (scale 1-10) on 4 survey items) with the self-care education program (mean score 7.2, SD 1.1). NPS was positive (+5). Satisfaction with the self-care education program was significantly associated with (higher) educational level and health literacy skills (P = .004, P = .038, respectively). No significant association was found with gender, age, marital status, employment status, Internet use, Internet literacy, treatment modality, time since total laryngectomy, and quality of life.CONCLUSION: The online self-care education program ITwC supporting early rehabilitation was feasible in clinical practice. In general, TLPs were satisfied with the program.
AB - PURPOSE: The purpose of this study was to investigate the feasibility of an online self-care education program supporting early rehabilitation of patients after total laryngectomy (TLPs) and factors associated with satisfaction.METHODS: Health care professionals (HCPs) were invited to participate and to recruit TLPs. TLPs were informed on the self-care education program "In Tune without Cords" (ITwC) after which they gained access. A study specific survey was used (at baseline T0 and postintervention T1) on TLPs' uptake. Usage, satisfaction (general impression, willingness to use, user-friendliness, satisfaction with self-care advice and strategies, Net Promoter Score (NPS)), sociodemographic, and clinical factors were analyzed.RESULTS: HCPs of 6 out of 9 centers (67% uptake rate) agreed to participate and recruited TLPs. In total, 55 of 75 TLPs returned informed consent and the baseline T0 survey and were provided access to ITwC (73% uptake rate). Thirty-eight of these 55 TLPs used ITwC and completed the T1 survey (69% usage rate). Most (66%) TLPs were satisfied (i.e., score ≥7 (scale 1-10) on 4 survey items) with the self-care education program (mean score 7.2, SD 1.1). NPS was positive (+5). Satisfaction with the self-care education program was significantly associated with (higher) educational level and health literacy skills (P = .004, P = .038, respectively). No significant association was found with gender, age, marital status, employment status, Internet use, Internet literacy, treatment modality, time since total laryngectomy, and quality of life.CONCLUSION: The online self-care education program ITwC supporting early rehabilitation was feasible in clinical practice. In general, TLPs were satisfied with the program.
KW - Adult
KW - Aged
KW - Cross-Sectional Studies
KW - Employment
KW - Female
KW - Health Literacy
KW - Humans
KW - Internet
KW - Laryngeal Neoplasms
KW - Laryngectomy
KW - Male
KW - Middle Aged
KW - Patient Education as Topic
KW - Patient Satisfaction
KW - Quality of Life
KW - Self Care
KW - Surveys and Questionnaires
KW - Journal Article
KW - Research Support, Non-U.S. Gov't
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UR - http://www.scopus.com/inward/citedby.url?scp=84955727634&partnerID=8YFLogxK
U2 - 10.1007/s00520-015-2896-1
DO - 10.1007/s00520-015-2896-1
M3 - Article
C2 - 26306518
AN - SCOPUS:84955727634
SN - 0941-4355
VL - 24
SP - 1261
EP - 1268
JO - Supportive Care in Cancer
JF - Supportive Care in Cancer
IS - 3
ER -