Assessing the impact of the twin track socio-economic intervention on reducing leprosy-related stigma in Cirebon District, Indonesia

Dadun Dadun, Ruth M.H. Peters, Wim H. van Brakel, Joske G.F. Bunders, Irwanto Irwanto, Barbara J. Regeer

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

The consequences of leprosy go beyond the physical, social and psychological, as leprosy can drive persons affected and their families into poverty, stigmatization and disability. This paper describes the impact of a socio-economic development (SED) intervention that uses a twin-track approach (two micro-credit models) to reduce leprosy-related stigma in Cirebon District, Indonesia. A randomized-controlled mixed-methods study design was used to test the effectiveness of the SED intervention. Three scales were used to measure stigma and participation restrictions among 30 SED clients and 57 controls, 20 in-depth interviews with SED clients and seven Focus Group Discussions (FGDs) with key persons were held and 65 profiles of the clients were written up and analysed. The qualitative data shows the socio-economic status of 44 out of 65 SED clients (67%) improved. The median family income increased by 25%, more clients reported higher self-esteem, better interaction with neighbours and less stigma than before, although disclosure concerns remained an issue. The scales indicate a positive effect of the intervention on reducing stigma (e.g., Stigma Assessment and Reduction of Impact (SARI) stigma scale mean difference total score of pre and post assessment for SED clients versus the control group was 8.5 versus 5.6). A twin track socio-economic intervention, if embedded and integrated, can increase participation, and be constructive in reducing leprosy-related stigma.

Original languageEnglish
Article number349
JournalInternational Journal of Environmental Research and Public Health
Volume16
Issue number3
DOIs
Publication statusPublished - 1 Feb 2019

Fingerprint

Indonesia
Economic Development
Leprosy
Economics
Stereotyping
Disclosure
Poverty
Focus Groups
Self Concept
Interviews
Psychology
Control Groups

Keywords

  • Disability
  • Indonesia
  • Leprosy
  • Socio economic
  • Stigma
  • Twin track approach

Cite this

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title = "Assessing the impact of the twin track socio-economic intervention on reducing leprosy-related stigma in Cirebon District, Indonesia",
abstract = "The consequences of leprosy go beyond the physical, social and psychological, as leprosy can drive persons affected and their families into poverty, stigmatization and disability. This paper describes the impact of a socio-economic development (SED) intervention that uses a twin-track approach (two micro-credit models) to reduce leprosy-related stigma in Cirebon District, Indonesia. A randomized-controlled mixed-methods study design was used to test the effectiveness of the SED intervention. Three scales were used to measure stigma and participation restrictions among 30 SED clients and 57 controls, 20 in-depth interviews with SED clients and seven Focus Group Discussions (FGDs) with key persons were held and 65 profiles of the clients were written up and analysed. The qualitative data shows the socio-economic status of 44 out of 65 SED clients (67{\%}) improved. The median family income increased by 25{\%}, more clients reported higher self-esteem, better interaction with neighbours and less stigma than before, although disclosure concerns remained an issue. The scales indicate a positive effect of the intervention on reducing stigma (e.g., Stigma Assessment and Reduction of Impact (SARI) stigma scale mean difference total score of pre and post assessment for SED clients versus the control group was 8.5 versus 5.6). A twin track socio-economic intervention, if embedded and integrated, can increase participation, and be constructive in reducing leprosy-related stigma.",
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Assessing the impact of the twin track socio-economic intervention on reducing leprosy-related stigma in Cirebon District, Indonesia. / Dadun, Dadun; Peters, Ruth M.H.; van Brakel, Wim H.; Bunders, Joske G.F.; Irwanto, Irwanto; Regeer, Barbara J.

In: International Journal of Environmental Research and Public Health, Vol. 16, No. 3, 349, 01.02.2019.

Research output: Contribution to JournalArticleAcademicpeer-review

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T1 - Assessing the impact of the twin track socio-economic intervention on reducing leprosy-related stigma in Cirebon District, Indonesia

AU - Dadun, Dadun

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AU - van Brakel, Wim H.

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AU - Irwanto, Irwanto

AU - Regeer, Barbara J.

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AB - The consequences of leprosy go beyond the physical, social and psychological, as leprosy can drive persons affected and their families into poverty, stigmatization and disability. This paper describes the impact of a socio-economic development (SED) intervention that uses a twin-track approach (two micro-credit models) to reduce leprosy-related stigma in Cirebon District, Indonesia. A randomized-controlled mixed-methods study design was used to test the effectiveness of the SED intervention. Three scales were used to measure stigma and participation restrictions among 30 SED clients and 57 controls, 20 in-depth interviews with SED clients and seven Focus Group Discussions (FGDs) with key persons were held and 65 profiles of the clients were written up and analysed. The qualitative data shows the socio-economic status of 44 out of 65 SED clients (67%) improved. The median family income increased by 25%, more clients reported higher self-esteem, better interaction with neighbours and less stigma than before, although disclosure concerns remained an issue. The scales indicate a positive effect of the intervention on reducing stigma (e.g., Stigma Assessment and Reduction of Impact (SARI) stigma scale mean difference total score of pre and post assessment for SED clients versus the control group was 8.5 versus 5.6). A twin track socio-economic intervention, if embedded and integrated, can increase participation, and be constructive in reducing leprosy-related stigma.

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