Changes in life satisfaction in persons with spinal cord injury during and after inpatient rehabilitation: Adaptation or measurement bias?

Christel M.C. Van Leeuwen; Marcel W.M. Post; Lucas H.V. Van Der Woude; Sonja De Groot; Christof Smit; Dirk Van Kuppevelt; Eline Lindeman

doi:10.1007/s11136-011-0073-7

Changes in life satisfaction in persons with spinal cord injury during and after inpatient rehabilitation: Adaptation or measurement bias?

Christel M.C. Van Leeuwen, Marcel W.M. Post^*, Lucas H.V. Van Der Woude, Sonja De Groot, Christof Smit, Dirk Van Kuppevelt, Eline Lindeman

^*Corresponding author for this work

Research output: Contribution to Journal › Article › Academic › peer-review

Abstract

Purpose To analyze changes in life satisfaction (LS) scores over time in persons with spinal cord injury (SCI) and to interpret what these changes mean. Methods Multicenter, prospective cohort study of persons with SCI (n = 96) classified into 3 life satisfaction trajectories identified earlier. Assessment took place 6 times from the start of active rehabilitation up to 5 years after discharge. Three LS scores were compared: (1) LS 'now' score, (2) 'comparison' score between LS 'now' and LS 'before the SCI', and (3) retrospective score of LS 'before the SCI'. Results Persons in the low LS trajectory showed increase in the LS 'now' score, but not in the LS 'comparison' score and retrospective score. Persons in the recovery trajectory showed increase in the LS 'now' and LS 'comparison' scores, but not in the retrospective score. Persons in the high LS trajectory showed increase in the 'comparison' LS score and decrease in the retrospective score, but no change in the LS 'now' score. Conclusions Diverging patterns of change were found and that were interpreted as adaptation or scale recalibration. Recalibration could also be considered healthy rebalancing after SCI. Being able to compare different LS ratings can facilitate the interpretation of change in and stability of LS.

Original language	English
Pages (from-to)	1499-1508
Number of pages	10
Journal	Quality of Life Research
Volume	21
Issue number	9
DOIs	https://doi.org/10.1007/s11136-011-0073-7
Publication status	Published - 1 Nov 2012
Externally published	Yes

Funding

Acknowledgments The authors would like to thank the participating Dutch rehabilitation centers, and the research assistants in these centers who collected all data: Rehabilitation Center De Hoogstraat (Utrecht), Reade, Centre for Rehabilitation and Rheumatology (Amsterdam), Rehabilitation Center Het Roessingh (Enschede), Adelante (Hoensbroek), Rehabilitation Center Sint Maartenskliniek (Nijmegen), Center for Rehabilitation—Location Beatrixoord (Haren), Rehabilitation Center Heliomare (Wijk aan Zee), and Rehabilitation Center Rijndam (Rotterdam). This study was supported by the Dutch Health Research and Development Council, ZON-MW Rehabilitation program, grant no. 1435.0003 and 1435.0025.

Keywords

Personal satisfaction
Quality of life
Rehabilitation
Response shift
Spinal cord injuries

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10.1007/s11136-011-0073-7

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@article{41e953610f0d407e83789bc00405f3ac,

title = "Changes in life satisfaction in persons with spinal cord injury during and after inpatient rehabilitation: Adaptation or measurement bias?",

abstract = "Purpose To analyze changes in life satisfaction (LS) scores over time in persons with spinal cord injury (SCI) and to interpret what these changes mean. Methods Multicenter, prospective cohort study of persons with SCI (n = 96) classified into 3 life satisfaction trajectories identified earlier. Assessment took place 6 times from the start of active rehabilitation up to 5 years after discharge. Three LS scores were compared: (1) LS 'now' score, (2) 'comparison' score between LS 'now' and LS 'before the SCI', and (3) retrospective score of LS 'before the SCI'. Results Persons in the low LS trajectory showed increase in the LS 'now' score, but not in the LS 'comparison' score and retrospective score. Persons in the recovery trajectory showed increase in the LS 'now' and LS 'comparison' scores, but not in the retrospective score. Persons in the high LS trajectory showed increase in the 'comparison' LS score and decrease in the retrospective score, but no change in the LS 'now' score. Conclusions Diverging patterns of change were found and that were interpreted as adaptation or scale recalibration. Recalibration could also be considered healthy rebalancing after SCI. Being able to compare different LS ratings can facilitate the interpretation of change in and stability of LS.",

keywords = "Personal satisfaction, Quality of life, Rehabilitation, Response shift, Spinal cord injuries",

author = "\{Van Leeuwen\}, \{Christel M.C.\} and Post, \{Marcel W.M.\} and \{Van Der Woude\}, \{Lucas H.V.\} and \{De Groot\}, Sonja and Christof Smit and \{Van Kuppevelt\}, Dirk and Eline Lindeman",

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doi = "10.1007/s11136-011-0073-7",

language = "English",

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Changes in life satisfaction in persons with spinal cord injury during and after inpatient rehabilitation: Adaptation or measurement bias? / Van Leeuwen, Christel M.C.; Post, Marcel W.M.; Van Der Woude, Lucas H.V. et al.
In: Quality of Life Research, Vol. 21, No. 9, 01.11.2012, p. 1499-1508.

Research output: Contribution to Journal › Article › Academic › peer-review

TY - JOUR

T1 - Changes in life satisfaction in persons with spinal cord injury during and after inpatient rehabilitation

T2 - Adaptation or measurement bias?

AU - Van Leeuwen, Christel M.C.

AU - Post, Marcel W.M.

AU - Van Der Woude, Lucas H.V.

AU - De Groot, Sonja

AU - Smit, Christof

AU - Van Kuppevelt, Dirk

AU - Lindeman, Eline

PY - 2012/11/1

Y1 - 2012/11/1

N2 - Purpose To analyze changes in life satisfaction (LS) scores over time in persons with spinal cord injury (SCI) and to interpret what these changes mean. Methods Multicenter, prospective cohort study of persons with SCI (n = 96) classified into 3 life satisfaction trajectories identified earlier. Assessment took place 6 times from the start of active rehabilitation up to 5 years after discharge. Three LS scores were compared: (1) LS 'now' score, (2) 'comparison' score between LS 'now' and LS 'before the SCI', and (3) retrospective score of LS 'before the SCI'. Results Persons in the low LS trajectory showed increase in the LS 'now' score, but not in the LS 'comparison' score and retrospective score. Persons in the recovery trajectory showed increase in the LS 'now' and LS 'comparison' scores, but not in the retrospective score. Persons in the high LS trajectory showed increase in the 'comparison' LS score and decrease in the retrospective score, but no change in the LS 'now' score. Conclusions Diverging patterns of change were found and that were interpreted as adaptation or scale recalibration. Recalibration could also be considered healthy rebalancing after SCI. Being able to compare different LS ratings can facilitate the interpretation of change in and stability of LS.

AB - Purpose To analyze changes in life satisfaction (LS) scores over time in persons with spinal cord injury (SCI) and to interpret what these changes mean. Methods Multicenter, prospective cohort study of persons with SCI (n = 96) classified into 3 life satisfaction trajectories identified earlier. Assessment took place 6 times from the start of active rehabilitation up to 5 years after discharge. Three LS scores were compared: (1) LS 'now' score, (2) 'comparison' score between LS 'now' and LS 'before the SCI', and (3) retrospective score of LS 'before the SCI'. Results Persons in the low LS trajectory showed increase in the LS 'now' score, but not in the LS 'comparison' score and retrospective score. Persons in the recovery trajectory showed increase in the LS 'now' and LS 'comparison' scores, but not in the retrospective score. Persons in the high LS trajectory showed increase in the 'comparison' LS score and decrease in the retrospective score, but no change in the LS 'now' score. Conclusions Diverging patterns of change were found and that were interpreted as adaptation or scale recalibration. Recalibration could also be considered healthy rebalancing after SCI. Being able to compare different LS ratings can facilitate the interpretation of change in and stability of LS.

KW - Personal satisfaction

KW - Quality of life

KW - Rehabilitation

KW - Response shift

KW - Spinal cord injuries

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ER -

Changes in life satisfaction in persons with spinal cord injury during and after inpatient rehabilitation: Adaptation or measurement bias?

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