Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis

M. van Dam; S.A.M. Sikkes; E. Rammeloo; E. Reinders; J.R. Jelgerhuis; J.J.G. Geurts; B.M.J. Uitdehaag; H.E. Hulst

doi:10.1177/20552173211038027

Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis

M. van Dam, S.A.M. Sikkes, E. Rammeloo, E. Reinders, J.R. Jelgerhuis, J.J.G. Geurts, B.M.J. Uitdehaag, H.E. Hulst

Clinical Neuropsychology

Research output: Contribution to Journal › Article › Academic › peer-review

Abstract

© The Author(s) 2021.Neuropsychological test scores in people with MS (PwMS) do not fully reflect cognitive functioning in daily life. Therefore, we developed a questionnaire based on instrumental activities of daily living (IADL), using the Amsterdam IADL-Q© for Alzheimer’s disease as starting point. Forty-eight items were evaluated on relevance and clarity by (inter)national experts (n = 30), PwMS (n = 61) and proxies (n = 30). Consequently, four items were omitted, two items were merged and seven items were added. Fifty items were included in the IADL questionnaire specific to cognitive functioning in MS (the MS-IADL-Q). Future studies are warranted to assess the psychometric properties of the MS-IADL-Q.

Original language	English
Journal	Multiple Sclerosis Journal - Experimental, Translational and Clinical
Volume	7
Issue number	3
DOIs	https://doi.org/10.1177/20552173211038027
Publication status	Published - 2021

Funding

The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was supported by the Dutch MS Research foundation, grant number 20-1111 MS. M.v.D. is supported by a research grant from Celgene.

Funders	Funder number
Dutch MS Research Foundation
Celgene

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van Dam, M., Sikkes, S. A. M., Rammeloo, E., Reinders, E., Jelgerhuis, J. R., Geurts, J. J. G., Uitdehaag, B. M. J., & Hulst, H. E. (2021). Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis. Multiple Sclerosis Journal - Experimental, Translational and Clinical, 7(3). https://doi.org/10.1177/20552173211038027

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abstract = "{\textcopyright} The Author(s) 2021.Neuropsychological test scores in people with MS (PwMS) do not fully reflect cognitive functioning in daily life. Therefore, we developed a questionnaire based on instrumental activities of daily living (IADL), using the Amsterdam IADL-Q{\textcopyright} for Alzheimer{\textquoteright}s disease as starting point. Forty-eight items were evaluated on relevance and clarity by (inter)national experts (n = 30), PwMS (n = 61) and proxies (n = 30). Consequently, four items were omitted, two items were merged and seven items were added. Fifty items were included in the IADL questionnaire specific to cognitive functioning in MS (the MS-IADL-Q). Future studies are warranted to assess the psychometric properties of the MS-IADL-Q.",

author = "{van Dam}, M. and S.A.M. Sikkes and E. Rammeloo and E. Reinders and J.R. Jelgerhuis and J.J.G. Geurts and B.M.J. Uitdehaag and H.E. Hulst",

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van Dam, M, Sikkes, SAM, Rammeloo, E, Reinders, E, Jelgerhuis, JR, Geurts, JJG, Uitdehaag, BMJ & Hulst, HE 2021, 'Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis', Multiple Sclerosis Journal - Experimental, Translational and Clinical, vol. 7, no. 3. https://doi.org/10.1177/20552173211038027

TY - JOUR

T1 - Cognitive functioning in everyday life

T2 - The development of a questionnaire on instrumental activities of daily living in multiple sclerosis

AU - van Dam, M.

AU - Sikkes, S.A.M.

AU - Rammeloo, E.

AU - Reinders, E.

AU - Jelgerhuis, J.R.

AU - Geurts, J.J.G.

AU - Uitdehaag, B.M.J.

AU - Hulst, H.E.

PY - 2021

Y1 - 2021

N2 - © The Author(s) 2021.Neuropsychological test scores in people with MS (PwMS) do not fully reflect cognitive functioning in daily life. Therefore, we developed a questionnaire based on instrumental activities of daily living (IADL), using the Amsterdam IADL-Q© for Alzheimer’s disease as starting point. Forty-eight items were evaluated on relevance and clarity by (inter)national experts (n = 30), PwMS (n = 61) and proxies (n = 30). Consequently, four items were omitted, two items were merged and seven items were added. Fifty items were included in the IADL questionnaire specific to cognitive functioning in MS (the MS-IADL-Q). Future studies are warranted to assess the psychometric properties of the MS-IADL-Q.

AB - © The Author(s) 2021.Neuropsychological test scores in people with MS (PwMS) do not fully reflect cognitive functioning in daily life. Therefore, we developed a questionnaire based on instrumental activities of daily living (IADL), using the Amsterdam IADL-Q© for Alzheimer’s disease as starting point. Forty-eight items were evaluated on relevance and clarity by (inter)national experts (n = 30), PwMS (n = 61) and proxies (n = 30). Consequently, four items were omitted, two items were merged and seven items were added. Fifty items were included in the IADL questionnaire specific to cognitive functioning in MS (the MS-IADL-Q). Future studies are warranted to assess the psychometric properties of the MS-IADL-Q.

U2 - 10.1177/20552173211038027

DO - 10.1177/20552173211038027

M3 - Article

SN - 2055-2173

VL - 7

JO - Multiple Sclerosis Journal - Experimental, Translational and Clinical

JF - Multiple Sclerosis Journal - Experimental, Translational and Clinical

IS - 3

ER -

Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis

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