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Cognitive functioning in everyday life: The development of a questionnaire on instrumental activities of daily living in multiple sclerosis

  • M. van Dam
  • , S.A.M. Sikkes
  • , E. Rammeloo
  • , E. Reinders
  • , J.R. Jelgerhuis
  • , J.J.G. Geurts
  • , B.M.J. Uitdehaag
  • , H.E. Hulst

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Neuropsychological test scores in people with MS (PwMS) do not fully reflect cognitive functioning in daily life. Therefore, we developed a questionnaire based on instrumental activities of daily living (IADL), using the Amsterdam IADL-Q© for Alzheimer’s disease as starting point. Forty-eight items were evaluated on relevance and clarity by (inter)national experts (n = 30), PwMS (n = 61) and proxies (n = 30). Consequently, four items were omitted, two items were merged and seven items were added. Fifty items were included in the IADL questionnaire specific to cognitive functioning in MS (the MS-IADL-Q). Future studies are warranted to assess the psychometric properties of the MS-IADL-Q.
Original languageEnglish
Pages (from-to)1-6
Number of pages6
JournalMultiple Sclerosis Journal - Experimental, Translational and Clinical
Volume7
Issue number3
Early online date3 Aug 2021
DOIs
Publication statusPublished - Sept 2021

Bibliographical note

© The Author(s) 2021.

Funding

The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was supported by the Dutch MS Research foundation, grant number 20-1111 MS. M.v.D. is supported by a research grant from Celgene.

Funders
Dutch MS Research Foundation
Celgene

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