Cohort profile: Demographic and clinical characteristics of the MILESTONE longitudinal cohort of young people approaching the upper age limit of their child mental health care service in Europe

Suzanne E. Gerritsen, Athanasios Maras, Larissa S. Van Bodegom, Mathilde M. Overbeek, Frank C. Verhulst, Dieter Wolke, Rebecca Appleton, Angelo Bertani, Maria G. Cataldo, Patrizia Conti, David Da Fonseca, Nikolina Davidović, Katarina Dodig-A †urković, Cecilia Ferrari, Federico Fiori, Tomislav Franić, Charlotte Gatherer, Giovanni De Girolamo, Natalie Heaney, Gaëlle HendrickxAlfred Kolozsvari, Flavia Micol Levi, Kate Lievesley, Jason Madan, Ottaviano Martinelli, Mathilde Mastroianni, Virginie Maurice, Fiona McNicholas, Lesley O'Hara, Moli Paul, Diane Purper-Ouakil, Veronique De Roeck, Frédérick Russet, Melanie C. Saam, Ilyas Sagar-Ouriaghli, Paramala J. Santosh, Anne Sartor, Aurélie Schandrin, Ulrike M.E. Schulze, Giulia Signorini, Swaran P. Singh, Jatinder Singh, Cathy Street, Priya Tah, Elena Tanase, Sabine Tremmery, Amanda Tuffrey, Helena Tuomainen, Therese A.M.J. Van Amelsvoort, Anna Wilson, Leanne Walker, Gwen C. Dieleman*

*Corresponding author for this work

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Purpose The presence of distinct child and adolescent mental health services (CAMHS) and adult mental health services (AMHS) impacts continuity of mental health treatment for young people. However, we do not know the extent of discontinuity of care in Europe nor the effects of discontinuity on the mental health of young people. Current research is limited, as the majority of existing studies are retrospective, based on small samples or used non-standardised information from medical records. The MILESTONE prospective cohort study aims to examine associations between service use, mental health and other outcomes over 24 months, using information from self, parent and clinician reports. Participants Seven hundred sixty-three young people from 39 CAMHS in 8 European countries, their parents and CAMHS clinicians who completed interviews and online questionnaires and were followed up for 2 years after reaching the upper age limit of the CAMHS they receive treatment at. Findings to date This cohort profile describes the baseline characteristics of the MILESTONE cohort. The mental health of young people reaching the upper age limit of their CAMHS varied greatly in type and severity: 32.8% of young people reported clinical levels of self-reported problems and 18.6% were rated to be € markedly ill', € severely ill' or € among the most extremely ill' by their clinician. Fifty-seven per cent of young people reported psychotropic medication use in the previous half year. Future plans Analysis of longitudinal data from the MILESTONE cohort will be used to assess relationships between the demographic and clinical characteristics of young people reaching the upper age limit of their CAMHS and the type of care the young person uses over the next 2 years, such as whether the young person transitions to AMHS. At 2 years follow-up, the mental health outcomes of young people following different care pathways will be compared. Trial registration number NCT03013595.

Original languageEnglish
Article number053373
Pages (from-to)1-15
Number of pages15
JournalBMJ Open
Volume11
Issue number12
DOIs
Publication statusPublished - 16 Dec 2021

Bibliographical note

Funding Information:
Funding The MILESTONE project was funded by European Commission’s 7th Framework Programme under grant number 602442.

Publisher Copyright:
© 2021 Museum National d'Histoire Naturelle. All rights reserved.

Keywords

  • adult psychiatry
  • child & adolescent psychiatry
  • international health services

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