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Connecting relational wellbeing and participatory action research: reflections on ‘unlikely’ transformations among women caring for disabled children in South Africa

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Abstract

Participatory action research (PAR) is a form of community-driven qualitative research which aims to collaboratively take action to improve participants’ lives. This is generally achieved through cognitive, reflexive learning cycles, whereby people ultimately enhance their wellbeing. This approach builds on two assumptions: (1) participants are able to reflect on and prioritize difficulties they face; (2) collective impetus and action are progressively achieved, ultimately leading to increased wellbeing. This article complicates these assumptions by analyzing a two-year PAR project with mothers of disabled children from a South African urban settlement. Participant observation notes, interviews, and a group discussion served as primary data. We found that mothers’ severe psychological stress and the strong intersectionality of their daily challenges hampered participation. Consequently, mothers considered the project ‘inactionable’. Yet, many women quickly started expressing important individual and collective wellbeing transformations. To understand these ‘unlikely’ transformations, a feminist relational account, in particular, that of relational wellbeing, proves essential. We reflect on the consequences of these findings for the dominant PAR methodology and operationalization, and propose to sensitize future PAR with marginalized women by employing relational wellbeing as an overarching ontological awareness.
Original languageEnglish
Title of host publicationRelational Theory: Feminist Approaches, Implications, and Applications
EditorsChristine M. Koggel, Ami Harbin, Jennifer J. Llewellyn
Place of PublicationLondon
PublisherRoutledge
Chapter17
Pages274-298
Number of pages25
ISBN (Electronic)9781003593843
ISBN (Print)9781032974590
DOIs
Publication statusPublished - 2025

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