Abstract
Although academic interest for patient involvement in health research decision-making is growing, in practice it proves challenging to involve patients meaningfully and sustainably. This article aims to unravel systemic factors influencing the embedding of meaningful patients' involvement in proposal appraisal at a private cancer research funding organization. In the case study, the emergent and participatory research approach Reflexive Monitoring in Action was applied. At first, a positive stance of stakeholders towards patient involvement was accompanied by a lack of tools and structures. This lack of tools led to the execution of various interventions. Analysis reveals that structural interventions succeeded in the bureaucratic context. The required cultural shift was also addressed, but took longer to materialize. This may have reduced the meaningful involvement of patients in proposal appraisal in practice. To overcome the underlying systemic barriers, an approach is needed that encourages stakeholders' reflexivity in the structural, cultural, and practical domain.
| Original language | English |
|---|---|
| Pages (from-to) | 254-263 |
| Number of pages | 10 |
| Journal | Science and Public Policy |
| Volume | 46 |
| Issue number | 2 |
| DOIs | |
| Publication status | Published - 1 Apr 2019 |
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Keywords
- Grant appraisal process
- Patient involvement
- System innovation
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Embedding meaningful patient involvement in the process of proposal appraisal at the Dutch Cancer Society. / Schölvinck, Anne Floor M.; Schuitmaker, Tjerk Jan; Broerse, Jacqueline E.W.
In: Science and Public Policy, Vol. 46, No. 2, 01.04.2019, p. 254-263.Research output: Contribution to Journal › Article › Academic › peer-review
TY - JOUR
T1 - Embedding meaningful patient involvement in the process of proposal appraisal at the Dutch Cancer Society
AU - Schölvinck, Anne Floor M.
AU - Schuitmaker, Tjerk Jan
AU - Broerse, Jacqueline E.W.
PY - 2019/4/1
Y1 - 2019/4/1
N2 - Although academic interest for patient involvement in health research decision-making is growing, in practice it proves challenging to involve patients meaningfully and sustainably. This article aims to unravel systemic factors influencing the embedding of meaningful patients' involvement in proposal appraisal at a private cancer research funding organization. In the case study, the emergent and participatory research approach Reflexive Monitoring in Action was applied. At first, a positive stance of stakeholders towards patient involvement was accompanied by a lack of tools and structures. This lack of tools led to the execution of various interventions. Analysis reveals that structural interventions succeeded in the bureaucratic context. The required cultural shift was also addressed, but took longer to materialize. This may have reduced the meaningful involvement of patients in proposal appraisal in practice. To overcome the underlying systemic barriers, an approach is needed that encourages stakeholders' reflexivity in the structural, cultural, and practical domain.
AB - Although academic interest for patient involvement in health research decision-making is growing, in practice it proves challenging to involve patients meaningfully and sustainably. This article aims to unravel systemic factors influencing the embedding of meaningful patients' involvement in proposal appraisal at a private cancer research funding organization. In the case study, the emergent and participatory research approach Reflexive Monitoring in Action was applied. At first, a positive stance of stakeholders towards patient involvement was accompanied by a lack of tools and structures. This lack of tools led to the execution of various interventions. Analysis reveals that structural interventions succeeded in the bureaucratic context. The required cultural shift was also addressed, but took longer to materialize. This may have reduced the meaningful involvement of patients in proposal appraisal in practice. To overcome the underlying systemic barriers, an approach is needed that encourages stakeholders' reflexivity in the structural, cultural, and practical domain.
KW - Grant appraisal process
KW - Patient involvement
KW - System innovation
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UR - http://www.scopus.com/inward/citedby.url?scp=85065721695&partnerID=8YFLogxK
U2 - 10.1093/scipol/scy055
DO - 10.1093/scipol/scy055
M3 - Article
VL - 46
SP - 254
EP - 263
JO - Science & Public Policy
JF - Science & Public Policy
SN - 0302-3427
IS - 2
ER -