Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search

N. S. Goedhart; C. A.C.M. Pittens; S. Tončinić; T. Zuiderent-Jerak; C. Dedding; J. E.W. Broerse

doi:10.1186/s40900-021-00306-w

Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search

N. S. Goedhart^*, C. A.C.M. Pittens, S. Tončinić, T. Zuiderent-Jerak, C. Dedding, J. E.W. Broerse

^*Corresponding author for this work

Research output: Contribution to Journal › Review article › Academic › peer-review

Abstract

Although public engagement in research is increasingly popular, the involvement of citizens living in vulnerable circumstances is rarely realized. This narrative review aims to describe and critically analyse concerns and corresponding strategies, tools, and methods that could support the inclusion of these citizens in health research. The 40 studies that are included were thematically analysed using the socioecological model. Concerns originate most often on the intrapersonal level of the socioecological model, but concerns were also identified at institutional, community, and policy levels. It is thought-provoking that there is a lack of attention for the research and policy structure in which engagement practices are designed, implemented and evaluated. More research is needed to explore how these cultures could be changed in a way that promotes rather than restrains the engagement of citizens living in vulnerable circumstances in research and policymaking.

Original language	English
Article number	59
Journal	Research Involvement and Engagement
Volume	7
Issue number	1
DOIs	https://doi.org/10.1186/s40900-021-00306-w
Publication status	Published - Dec 2021

Bibliographical note

Funding Information:
We gratefully thank Dr Ana Diaz-Ponce, project officer, Alzheimer Europe, Dr Bego?a Nafr?a Escalera, patient engagement research coordinator, Sant Joan de D?u Children?s Hospital, and Dr Tjerk-Jan Schuitmaker, Athena Institute, Vrije Universiteit Amsterdam for their help with developing our search strategy and refining our focus during the screening process.

Publisher Copyright:
© 2021, The Author(s).

Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.

Funding

We gratefully thank Dr Ana Diaz-Ponce, project officer, Alzheimer Europe, Dr Bego?a Nafr?a Escalera, patient engagement research coordinator, Sant Joan de D?u Children?s Hospital, and Dr Tjerk-Jan Schuitmaker, Athena Institute, Vrije Universiteit Amsterdam for their help with developing our search strategy and refining our focus during the screening process.

Funders	Funder number
Sant Joan de Déu Children’s Hospital

Keywords

Citizens living in vulnerable circumstances
Health inequalities
Methods
Narrative review
Patient engagement
Public engagement
Socioecological model
Socioeconomic inequalities

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1186/s40900-021-00306-w

Persistent URL (handle)

Copy link address

Cite this

@article{be531bf9c2ff4120b0db3091711746f8,

title = "Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search",

abstract = "Although public engagement in research is increasingly popular, the involvement of citizens living in vulnerable circumstances is rarely realized. This narrative review aims to describe and critically analyse concerns and corresponding strategies, tools, and methods that could support the inclusion of these citizens in health research. The 40 studies that are included were thematically analysed using the socioecological model. Concerns originate most often on the intrapersonal level of the socioecological model, but concerns were also identified at institutional, community, and policy levels. It is thought-provoking that there is a lack of attention for the research and policy structure in which engagement practices are designed, implemented and evaluated. More research is needed to explore how these cultures could be changed in a way that promotes rather than restrains the engagement of citizens living in vulnerable circumstances in research and policymaking.",

keywords = "Citizens living in vulnerable circumstances, Health inequalities, Methods, Narrative review, Patient engagement, Public engagement, Socioecological model, Socioeconomic inequalities",

author = "Goedhart, {N. S.} and Pittens, {C. A.C.M.} and S. Ton{\v c}ini{\'c} and T. Zuiderent-Jerak and C. Dedding and Broerse, {J. E.W.}",

note = "Funding Information: We gratefully thank Dr Ana Diaz-Ponce, project officer, Alzheimer Europe, Dr Bego?a Nafr?a Escalera, patient engagement research coordinator, Sant Joan de D?u Children?s Hospital, and Dr Tjerk-Jan Schuitmaker, Athena Institute, Vrije Universiteit Amsterdam for their help with developing our search strategy and refining our focus during the screening process. Publisher Copyright: {\textcopyright} 2021, The Author(s). Copyright: Copyright 2021 Elsevier B.V., All rights reserved.",

year = "2021",

month = dec,

doi = "10.1186/s40900-021-00306-w",

language = "English",

volume = "7",

journal = "Research Involvement and Engagement",

issn = "2056-7529",

publisher = "Springer_Verlag",

number = "1",

}

TY - JOUR

T1 - Engaging citizens living in vulnerable circumstances in research

T2 - a narrative review using a systematic search

AU - Goedhart, N. S.

AU - Pittens, C. A.C.M.

AU - Tončinić, S.

AU - Zuiderent-Jerak, T.

AU - Dedding, C.

AU - Broerse, J. E.W.

N1 - Funding Information: We gratefully thank Dr Ana Diaz-Ponce, project officer, Alzheimer Europe, Dr Bego?a Nafr?a Escalera, patient engagement research coordinator, Sant Joan de D?u Children?s Hospital, and Dr Tjerk-Jan Schuitmaker, Athena Institute, Vrije Universiteit Amsterdam for their help with developing our search strategy and refining our focus during the screening process. Publisher Copyright: © 2021, The Author(s). Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

PY - 2021/12

Y1 - 2021/12

N2 - Although public engagement in research is increasingly popular, the involvement of citizens living in vulnerable circumstances is rarely realized. This narrative review aims to describe and critically analyse concerns and corresponding strategies, tools, and methods that could support the inclusion of these citizens in health research. The 40 studies that are included were thematically analysed using the socioecological model. Concerns originate most often on the intrapersonal level of the socioecological model, but concerns were also identified at institutional, community, and policy levels. It is thought-provoking that there is a lack of attention for the research and policy structure in which engagement practices are designed, implemented and evaluated. More research is needed to explore how these cultures could be changed in a way that promotes rather than restrains the engagement of citizens living in vulnerable circumstances in research and policymaking.

AB - Although public engagement in research is increasingly popular, the involvement of citizens living in vulnerable circumstances is rarely realized. This narrative review aims to describe and critically analyse concerns and corresponding strategies, tools, and methods that could support the inclusion of these citizens in health research. The 40 studies that are included were thematically analysed using the socioecological model. Concerns originate most often on the intrapersonal level of the socioecological model, but concerns were also identified at institutional, community, and policy levels. It is thought-provoking that there is a lack of attention for the research and policy structure in which engagement practices are designed, implemented and evaluated. More research is needed to explore how these cultures could be changed in a way that promotes rather than restrains the engagement of citizens living in vulnerable circumstances in research and policymaking.

KW - Citizens living in vulnerable circumstances

KW - Health inequalities

KW - Methods

KW - Narrative review

KW - Patient engagement

KW - Public engagement

KW - Socioecological model

KW - Socioeconomic inequalities

UR - http://www.scopus.com/inward/record.url?scp=85114382144&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85114382144&partnerID=8YFLogxK

U2 - 10.1186/s40900-021-00306-w

DO - 10.1186/s40900-021-00306-w

M3 - Review article

AN - SCOPUS:85114382144

SN - 2056-7529

VL - 7

JO - Research Involvement and Engagement

JF - Research Involvement and Engagement

IS - 1

M1 - 59

ER -

Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search

Abstract

Bibliographical note

Funding

Keywords

UN SDGs

Access to Document

Persistent URL (handle)

Other files and links

Fingerprint

Cite this