Exploring the role, needs and challenges of relatives of mothers with HIV or HIV and psychosis: A qualitative study

Ruan Spies, Olivia K. Derks, Paula S. Sterkenburg, Carlo Schuengel, Esme van Rensburg

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

This study explored types and nature of supports by relatives of mothers living with HIV and psychosis in comparison to mothers with HIV only. Interview data on their experiences of their roles, needs and challenges were collected from 33 relatives on mothers with HIV and psychosis (n=12, females=10, blacks =12, age ranges 21 to 62) and those with HIV only (n=21, females=16, blacks =21, age ranges 18 to 63). The data were thematically analysed utilizing Atlas.ti. The results showed that relatives in both groups provided a variety of supporting roles. Important challenges were experiencing the negative consequences of especially HIV in combination with psychosis in their lives and dealing with the caregiving responsibilities without having enough information. Important strengths included utilizing support networks and remaining hopeful. Support needs for carers of mothers living with HIV related psychosis or HIV only, can be enhanced with increasing social and material resources at the community level. Supporting needs can be addressed by empowering communities through psycho-education
Original languageEnglish
Pages (from-to)56-62
JournalJournal of Psychology in Africa
Volume26
Issue number1
DOIs
Publication statusPublished - 2016

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Psychotic Disorders
Mothers
HIV
Atlases
Caregivers
Interviews
Education

Keywords

  • family psycho-education
  • perceived social support
  • HIV/Aids
  • psychosis
  • caregiver experience

Cite this

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title = "Exploring the role, needs and challenges of relatives of mothers with HIV or HIV and psychosis: A qualitative study",
abstract = "This study explored types and nature of supports by relatives of mothers living with HIV and psychosis in comparison to mothers with HIV only. Interview data on their experiences of their roles, needs and challenges were collected from 33 relatives on mothers with HIV and psychosis (n=12, females=10, blacks =12, age ranges 21 to 62) and those with HIV only (n=21, females=16, blacks =21, age ranges 18 to 63). The data were thematically analysed utilizing Atlas.ti. The results showed that relatives in both groups provided a variety of supporting roles. Important challenges were experiencing the negative consequences of especially HIV in combination with psychosis in their lives and dealing with the caregiving responsibilities without having enough information. Important strengths included utilizing support networks and remaining hopeful. Support needs for carers of mothers living with HIV related psychosis or HIV only, can be enhanced with increasing social and material resources at the community level. Supporting needs can be addressed by empowering communities through psycho-education",
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Exploring the role, needs and challenges of relatives of mothers with HIV or HIV and psychosis: A qualitative study. / Spies, Ruan; Derks, Olivia K.; Sterkenburg, Paula S.; Schuengel, Carlo; van Rensburg, Esme.

In: Journal of Psychology in Africa, Vol. 26, No. 1, 2016, p. 56-62.

Research output: Contribution to JournalArticleAcademicpeer-review

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AU - van Rensburg, Esme

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AB - This study explored types and nature of supports by relatives of mothers living with HIV and psychosis in comparison to mothers with HIV only. Interview data on their experiences of their roles, needs and challenges were collected from 33 relatives on mothers with HIV and psychosis (n=12, females=10, blacks =12, age ranges 21 to 62) and those with HIV only (n=21, females=16, blacks =21, age ranges 18 to 63). The data were thematically analysed utilizing Atlas.ti. The results showed that relatives in both groups provided a variety of supporting roles. Important challenges were experiencing the negative consequences of especially HIV in combination with psychosis in their lives and dealing with the caregiving responsibilities without having enough information. Important strengths included utilizing support networks and remaining hopeful. Support needs for carers of mothers living with HIV related psychosis or HIV only, can be enhanced with increasing social and material resources at the community level. Supporting needs can be addressed by empowering communities through psycho-education

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