Exploring views on satisfaction with life in young children with chronic illness: an innovative approach to the collection of self-report data from children under 11

D. Christie, G. Romano, J. Barnes, N. Madge, D.B. Nicholas, H.M. Koot, D.F. Armstrong, M. Shevlin, X. Kantaris, H. Khatun, A.G. Sutcliffe

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

The objective of this study was to explore young children's views on the impact of chronic illness on their life in order to inform future development of a patient-based self-report health outcome measure. We describe an approach to facilitating self-report views from young children with chronic illness. A board game was designed in order to obtain qualitative data from 39 children with a range of chronic illness conditions and 38 healthy controls ranging in age from 3 to 11 years. The format was effective in engaging young children in a self-report process of determining satisfaction with life and identified nine domains. The board game enabled children aged 5-11 years with chronic illness to describe the effects of living with illness on home, family, friends, school and life in general. It generated direct, non-interpreted material from children who, because of their age, may have been considered unable or limited their ability to discuss and describe how they feel. Obtaining this information for children aged 4 and under continues to be a challenge. © SAGE Publications 2011.
Original languageEnglish
Pages (from-to)5-15
JournalClinical Child Psychology and Psychiatry
Volume17
Issue number1
DOIs
Publication statusPublished - 2012

Bibliographical note

1359104510392309 [pii]

Fingerprint Dive into the research topics of 'Exploring views on satisfaction with life in young children with chronic illness: an innovative approach to the collection of self-report data from children under 11'. Together they form a unique fingerprint.

  • Cite this