From genetic privacy to open consent.

J. Lunshof, R. Chadwick, D.B. Vorhaus, G.M. Church

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Recent advances in high-throughput genomic technologies are showing concrete results in the form of an increasing number of genome-wide association studies and in the publication of comprehensive individual genome-phenome data sets. As a consequence of this flood of information the established concepts of research ethics are stretched to their limits, and issues of privacy, confidentiality and consent for research are being re-examined. Here, we show the feasibility of the co-development of scientific innovation and ethics, using the open-consent framework that was implemented in the Personal Genome Project as an example. © 2008 Nature Publishing Group.
Original languageEnglish
Pages (from-to)406-411
JournalNature Reviews Genetics
Volume9
DOIs
Publication statusPublished - 2008

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