How do Positive Deviants Overcome Health-Related Stigma? An Exploration of Development of Positive Deviance Among People With Stigmatized Health Conditions in Indonesia

Sarju Sing Rai*, Elena V. Syurina, Ruth M.H. Peters, Annisa Ika Putri, Irwanto Irwanto, Marjolein B.M. Zweekhorst

*Corresponding author for this work

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

A constructivist grounded theory approach was used to understand how some people living with stigmatized health conditions develop positive deviance to overcome stigma. We examined interviews from 13 identified positive deviants living with four different stigmatized health conditions (HIV, leprosy, schizophrenia, and diabetes) in Indonesia. Positive deviance develops in the form of psychological empowerment through improvement of self-belief and perception (intrapersonal component), development of understanding and skill to exert control in life (interactional component), and self-discovery of successful behaviors and strategies to avert stigma (behavioral component). Positive deviants, after being empowered, start empowering others affected by sharing their knowledge and fostering social awareness and acceptance. The findings revealed the presence of problem-solving ability and agency within the community of stigmatized individuals in Indonesia and warrant researchers to partner with the community to expedite the diffusion of transferable positive deviant strategies within and outside the communities.

Original languageEnglish
Pages (from-to)622-634
Number of pages13
JournalQualitative Health Research
Volume32
Issue number4
Early online date14 Dec 2021
DOIs
Publication statusPublished - Mar 2022

Bibliographical note

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was supported by Leprosy Research Initiative (LRI), 706.18.20.LRI; Erasmus Mundus Joint Doctorate (EMJD) Fellowship-Trans Global Health Consortium, 2013-0039.

Publisher Copyright:
© The Author(s) 2021.

Funding

The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study was supported by Leprosy Research Initiative (LRI), 706.18.20.LRI; Erasmus Mundus Joint Doctorate (EMJD) Fellowship-Trans Global Health Consortium, 2013-0039.

Keywords

  • adaptation
  • Asian people
  • chronic illness and disease
  • coping
  • enduring
  • grounded theory research strategies
  • Indonesia
  • power empowerment
  • southeast Asia
  • stigma

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