Impact of the Care and Coercion Act on recorded involuntary care in intellectual disability care: a time-series analysis

L. Bakkum, E. H. Bisschops*, S. Lagerweij, C. Schuengel

*Corresponding author for this work

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Background
On 1 January 2020, the Care and Coercion Act came into effect in the Netherlands, subjecting involuntary care to more strict regulations and monitoring. This study tested changes in recordings of involuntary care during the transitional year of 2020 and after full implementation in 2021, which coincided with the first severe test of the new regulations, when COVID-19 lockdown measures were taken on 16 March 2020.

Methods
Data consisted of weekly counts of involuntary care from 1 January 2017 to 31 December 2021, taken from the care data of more than 3000 clients with intellectual disabilities and challenging behaviour of 's Heeren Loo, a large long-term care organisation in the Netherlands. An interrupted time series design was used to compare the period under the former law with the period under the new law and to the period during and after implementation, taking into account the impact of the COVID-19 lockdown measures on recordings of involuntary care.

Results
Under the new act in Week 1 of 2020, a statistically significant drop occurred in involuntary care counts, after which these counts gradually decreased. The start of 2021, the year in which the act was fully implemented, showed an initial increase in counts of involuntary care, followed by a decrease (all Ps < .001). The introduction of the COVID-19 lockdown measures did not statistically affect the weekly counts of involuntary care.

Conclusions
The decrease in registered involuntary care after the Care and Coercion Act came into effect is a first indication of the efficacy of this new law that requires careful multidisciplinary consultations around the right of clients to respect their self-determination. Follow-up research should examine whether the impact of the new law aligns with clients' experiences of self-determination.
Original languageEnglish
Pages (from-to)1216-1226
Number of pages11
JournalJournal of Intellectual Disability Research
Volume67
Issue number12
Early online date20 Nov 2022
DOIs
Publication statusPublished - Dec 2023

Bibliographical note

Special Issue: Secondary Analysis of Large Quantitative Datasets.

Funding Information:
This research was supported by ZonMw, Netherlands Organisation for Health Research and Development, and Scientific Research Foundation 's Heeren Loo.

Publisher Copyright:
© 2022 The Authors. Journal of Intellectual Disability Research published by MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disabilities and John Wiley & Sons Ltd.

Funding

This research was supported by ZonMw, Netherlands Organisation for Health Research and Development, and Scientific Research Foundation 's Heeren Loo.

Keywords

  • Care and Coercion Act
  • COVID-19
  • intellectual disabilities
  • involuntary care
  • legislation
  • restrictive measures

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