Managing Epilepsy Well: Emerging e-Tools for epilepsy self-management

Ross Shegog, Yvan A. Bamps, Archna Patel, Jody Kakacek, Cam Escoffery, Erica K. Johnson, Ukwuoma O. Ilozumba

    Research output: Chapter in Book / Report / Conference proceedingChapterAcademicpeer-review

    Abstract

    The Managing Epilepsy Well (MEW) Network was established in 2007 by the Centers for Disease Control and Prevention Epilepsy Program to expand epilepsy self-management research. The network has employed collaborative research strategies to develop, test, and disseminate evidence-based, community-based, and e-Health interventions (e-Tools) for epilepsy self-management for people with epilepsy, caregivers, and health-care providers. Since its inception, MEW Network collaborators have conducted formative studies (n. = 7) investigating the potential of e-Health to support epilepsy self-management and intervention studies evaluating e-Tools (n. = 5). The MEW e-Tools (the MEW website, WebEase, UPLIFT, MINDSET, and PEARLS online training) and affiliated e-Tools (Texting 4 Control) are designed to complement self-management practices in each phase of the epilepsy care continuum. These tools exemplify a concerted research agenda, shared methodological principles and models for epilepsy self-management, and a communal knowledge base for implementing e-Health to improve quality of life for people with epilepsy. © 2013 Elsevier Inc.
    Original languageEnglish
    Title of host publicationEpilepsy and Behavior
    Pages133-140
    Number of pages8
    DOIs
    Publication statusPublished - Oct 2013

    Publication series

    NameEpilepsy and Behavior
    Volume29

    Keywords

    • E-Health
    • E-Health tools
    • Epilepsy
    • Internet
    • Meaningful access
    • Quality of life
    • Self-management
    • Technology

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