TY - JOUR
T1 - Nothing about us, without us
T2 - A case study of a consumer-run organization by and for people on the autism spectrum in the Netherlands
AU - van den Bosch, Karin
AU - Krzeminska, Anna
AU - Song, Eun Young
AU - van Hal, Lineke
AU - Ebben, Hannah
AU - Schippers, Alice
AU - Waltz, M.
N1 - Special Issue (4): Neurodiversity
PY - 2019/7
Y1 - 2019/7
N2 - In this exploratory case study based on qualitative research, we explore the perspectives and experiences of autistic self-advocates in the Netherlands regarding autism, (self-)advocacy, and consumer-run organizations. The focus of our study is a consumer-run organization by and for adult Persons on the Autism Spectrum in the Netherlands: PAS-Nederland or PAS for short. Our analysis reveals four themes relevant to the acceptance and integration of adults with autism into society and work: (1) invisibility of autistic adults; (2) diversity of the autism spectrum; (3) autistic leadership; and (4) collaboration between people with and without autism. We discuss the practical implications of our findings for the inclusion of people with autism in work and society. Our study underscores the importance of putting autistic people at the center of decision-making processes and solutions aimed at improving their outcomes in society, in general, and in the workplace specifically.
AB - In this exploratory case study based on qualitative research, we explore the perspectives and experiences of autistic self-advocates in the Netherlands regarding autism, (self-)advocacy, and consumer-run organizations. The focus of our study is a consumer-run organization by and for adult Persons on the Autism Spectrum in the Netherlands: PAS-Nederland or PAS for short. Our analysis reveals four themes relevant to the acceptance and integration of adults with autism into society and work: (1) invisibility of autistic adults; (2) diversity of the autism spectrum; (3) autistic leadership; and (4) collaboration between people with and without autism. We discuss the practical implications of our findings for the inclusion of people with autism in work and society. Our study underscores the importance of putting autistic people at the center of decision-making processes and solutions aimed at improving their outcomes in society, in general, and in the workplace specifically.
KW - autism
KW - autism spectrum disorder
KW - consumer-run organization
KW - experiential knowledge
KW - self-advocacy
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UR - http://www.scopus.com/inward/citedby.url?scp=85054975961&partnerID=8YFLogxK
U2 - 10.1017/jmo.2018.54
DO - 10.1017/jmo.2018.54
M3 - Article
SN - 1833-3672
VL - 25
SP - 464
EP - 480
JO - Journal of Management & Organization
JF - Journal of Management & Organization
IS - 4
ER -