Abstract
Background: The high support needs of persons with profound intellectual and multiple disabilities hamper their possibilities for self-determination. To support their self-determination understanding of what this means for this group is necessary. Method: A three-round Delphi procedure with international experts was undertaken to operationalise self-determination for persons with profound intellectual and multiple disabilities. The quantitative output of Likert scales guided us in finding consensus or differences in the qualitative data. First round qualitative data were analysed thematically. Results: The analysis revealed four topics: (1) statements regarding the characteristics of the person with profound intellectual and multiple disabilities, (2) statements regarding characteristics of the social environment, (3) statements regarding the concept of self-determination, and (4) statements regarding the definition and operationalisation of concepts. Conclusion: Consensus was found on the assumption that persons with profound intellectual and multiple disabilities can live a self-determined life and on the importance of the interplay between persons with profound intellectual and multiple disabilities and the environment in order to experience self-determination.
| Original language | English |
|---|---|
| Pages (from-to) | 300-312 |
| Number of pages | 13 |
| Journal | Journal of Intellectual and Developmental Disability |
| Volume | 48 |
| Issue number | 3 |
| Early online date | 7 Dec 2022 |
| DOIs | |
| Publication status | Published - 2023 |
Bibliographical note
Publisher Copyright:© 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
Funding
This study was funded by the Dutch Ministry of Health (Ministerie van Volksgezondheid, Welzijn en Sport [VWS]), The Netherlands. We do not have any conflict of interest in publishing the results of our study. This study has not been published before and is not being considered for publication elsewhere. All authors contributed to the manuscript agree to the order of authors as listed on the title page.
| Funders | Funder number |
|---|---|
| Ministerie van Volksgezondheid, Welzijn en Sport |
Keywords
- Delphi study
- profound intellectual and multiple disabilities
- Self-determination