Participating in the digital world: a consensus statement on digital social contact for people with disabilities living in sheltered care facility homes

Linda N. Douma, Anne Tharner, Paula S. Sterkenburg, Lotte Piekema, Annet ten Brug, Noud Frielink, Lianne Bakkum, Esmee Adam, J. Clasien de Schipper, Petri Embregts, Carlo Schuengel*

*Corresponding author for this work

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Introduction: Digital social contact is increasingly being used, which accelerated during the COVID-19 pandemic. This study aimed to determine the consensus among stakeholders regarding recommendations for the use and facilitation of digital social contact for people with intellectual disabilities living in sheltered care facility homes. Methods: This consensus statement was developed in three consecutive rounds of questionnaires (rapid online modified Delphi design). The expert-groups included people with disabilities (N = 6) and their families (N = 10), support professionals (N = 9), behavioural consultants (N = 7), managers of sheltered care facility homes (N = 10), scientists and industry experts (N = 15). Findings: Four main themes were identified: 1. Reasons for and types of digital social contact; 2. Support and training needs; 3. Materials and other requirements needed to enable digital social contact; and 4. Best practices and future developments. For each theme, several recommendations were formulated. Discussion and conclusion: This study resulted in a consensus statement aimed mainly at care professionals, families of people with intellectual disabilities and managers of sheltered care facility homes. Findings show that digital social contact can contribute to societal participation of people with disabilities. Additionally, tailored exploration of digital contact is recommended, as well as aiming for inclusive-by-design technology developments with developers and stakeholders working together.

Original languageEnglish
Pages (from-to)1452-1466
JournalInternational Journal of Developmental Disabilities
Volume70
Issue number8
DOIs
Publication statusAccepted/In press - 2023

Bibliographical note

Publisher Copyright:
© 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.

Funding

This work was supported by the COVID-19 programme of ZonMw [reference number: 10430022010013]. The funding body had no role in the design of the study, in the collection, analysis, and interpretation of the data, or in the writing of the manuscript. The authors thank all participants for their contribution to this study. Furthermore, the authors thank Marion Kersten (Vereniging Gehandicaptenzorg Nederland) and Pouwel van de Siepkamp (KansPlus) for their advisory role during the project as well as their support in recruiting participants. The authors also thank Mark Meekel, Leroy van der Kust, Christina Oran and Cindy Doornberg for their advisory role in designing the questionnaires. Lastly, the authors thank native UK English speaker Mike Singh for proofreading the text.

FundersFunder number
Marion Kersten
Pouwel van de Siepkamp
COVID-19 programme of ZonMw10430022010013

    Keywords

    • consensus statement
    • digital social contact
    • intellectual disabilities
    • multiple disabilities
    • participation

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