Patient–provider perspectives on self-management support and patient empowerment in chronic care: A mixed-methods study in a rural sub-Saharan setting

Vibian Angwenyi, Carolien Aantjes, Joske Bunders-Aelen, Jeffrey V. Lazarus, Bart Criel

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Aim: To explore how provision of self-management support to chronically-ill patients in resource-limited settings contributes to patient empowerment in chronic care. Design: Concurrent descriptive mixed methods research. Methods: A survey of 140 patients with chronic conditions administered at four time-points in 12 months. We conducted 14 interviews and four focus-group discussions with patients (N = 31); 13 healthcare provider interviews; and observations of four patient-support group meetings. Data were collected between April 2016 - May 2017 in rural Malawi. Qualitative data were analysed using a thematic approach and descriptive statistical analysis performed on survey data. Results: Healthcare professionals facilitated patient empowerment through health education, although literacy levels and environmental factors affected self-management guidance. Information exchanged during patient–provider interactions varied and discussions centred around medical aspects and health promoting behaviour. Less than 40% of survey patients prepared questions prior to clinic consultations. Health education was often unstructured and delegated to non-physician providers, mostly untrained in chronic care. Patients accessed psychosocial support from volunteer-led community home-based care programmes. HIV support-groups regularly interacted with peers and practical skills exchanged in a supportive environment, reinforcing patient's self-mangement competence and proactiveness in health care. Conclusion: For optimal self-management, reforms at inter-personal and organizational level are needed including; mutual patient-provider collaboration, diversifying access to self-management support resources and restructuring patient support-groups to cater to diverse chronic conditions. Impact: Our study provides insights and framing of self-management support and empowerment for patients in long-term care in sub-Saharan Africa. Lessons drawn could feed into designing and delivering responsive chronic care interventions.

Translated title of the contributionPatient–provider perspectives on self-management support and patient empowerment in chronic care: A mixed-methods study in a rural sub-Saharan setting
Original languageChinese
Pages (from-to)2980-2994
Number of pages15
JournalJournal of Advanced Nursing
Volume75
Issue number11
Early online date21 Jun 2019
DOIs
Publication statusPublished - 1 Nov 2019

Fingerprint

Patient Participation
Self Care
Self-Help Groups
Health Education
Interviews
Delivery of Health Care
Malawi
Group Processes
Africa South of the Sahara
Long-Term Care
Home Care Services
Focus Groups
Health Personnel
Mental Competency
Volunteers
Chronic Disease
Referral and Consultation
HIV

Keywords

  • chronic care
  • hiv
  • mixed methods
  • non-communicable diseases
  • nurse practitioners
  • nursing care
  • patient empowerment
  • self-management support
  • sub-saharan africa

Cite this

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title = "病患自我管理互助角度和慢性病人护理授权:撒哈拉以南农村地区进行的混合方法研究",
abstract = "Aim: To explore how provision of self-management support to chronically-ill patients in resource-limited settings contributes to patient empowerment in chronic care. Design: Concurrent descriptive mixed methods research. Methods: A survey of 140 patients with chronic conditions administered at four time-points in 12 months. We conducted 14 interviews and four focus-group discussions with patients (N = 31); 13 healthcare provider interviews; and observations of four patient-support group meetings. Data were collected between April 2016 - May 2017 in rural Malawi. Qualitative data were analysed using a thematic approach and descriptive statistical analysis performed on survey data. Results: Healthcare professionals facilitated patient empowerment through health education, although literacy levels and environmental factors affected self-management guidance. Information exchanged during patient–provider interactions varied and discussions centred around medical aspects and health promoting behaviour. Less than 40{\%} of survey patients prepared questions prior to clinic consultations. Health education was often unstructured and delegated to non-physician providers, mostly untrained in chronic care. Patients accessed psychosocial support from volunteer-led community home-based care programmes. HIV support-groups regularly interacted with peers and practical skills exchanged in a supportive environment, reinforcing patient's self-mangement competence and proactiveness in health care. Conclusion: For optimal self-management, reforms at inter-personal and organizational level are needed including; mutual patient-provider collaboration, diversifying access to self-management support resources and restructuring patient support-groups to cater to diverse chronic conditions. Impact: Our study provides insights and framing of self-management support and empowerment for patients in long-term care in sub-Saharan Africa. Lessons drawn could feed into designing and delivering responsive chronic care interventions.",
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病患自我管理互助角度和慢性病人护理授权:撒哈拉以南农村地区进行的混合方法研究. / Angwenyi, Vibian; Aantjes, Carolien; Bunders-Aelen, Joske; Lazarus, Jeffrey V.; Criel, Bart.

In: Journal of Advanced Nursing, Vol. 75, No. 11, 01.11.2019, p. 2980-2994.

Research output: Contribution to JournalArticleAcademicpeer-review

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