Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research

Galina Velikova; Jose M. Valderas; Caroline Potter; Laurie Batchelder; Christine A’Court; Matthew Baker; Jennifer Bostock; Angela Coulter; Ray Fitzpatrick; Julien Forder; Diane Fox; Louise Geneen; Elizabeth Gibbons; Crispin Jenkinson; Karen Jones; Laura Kelly; Michele Peters; Brendan Mulhern; Alexander Labeit; Donna Rowen; Keith Meadows; Jackie Elliott; John E. Brazier; Emma Knowles; Anju Keetharuth; John E. Brazier; Janice Connell; Jill Carlton; Lizzie Taylor Buck; Thomas Ricketts; Michael Barkham; Pushpendra Goswami; Sam Salek; Tatyana Ionova; Esther Oliva; Adele K. Fielding; Marina Karakantza; Saad Al-Ismail; Graham P. Collins; Stewart McConnell; Catherine Langton; Daniel M. Jennings; Roger Else; Jonathan Kell; Helen Ward; Sophie Day; Elizabeth Lumley; Patrick Phillips; Rosie Duncan; Helen Buckley-Woods; Ahmed Aber; Gerogina Jones; Jonathan Michaels; Ian Porter; Jaheeda Gangannagaripalli; Antoinette Davey; Ignacio Ricci-Cabello; Kirstie Haywood; Stine Thestrup Hansen; Jose Valderas; Deb Roberts; Anil Gumber; Bélène Podmore; Andrew Hutchings; Jan van der Meulen; Ajay Aggarwal; Sujith Konan; Andrew Price; William Jackson; Nick Bottomley; Michael Philiips; Toby Knightley-Day; David Beard; Elizabeth Gibbons; Ray Fitzpatrick; Joanne Greenhalgh; Kate Gooding; Elizabeth Gibbons; Chema Valderas; Judy Wright; Sonia Dalkin; David Meads; Nick Black; Carol Fawkes; Robert Froud; Dawn Carnes; Andrew Price; Jonathan Cook; Helen Dakin; James Smith; Sujin Kang; David Beard; Catrin Griffiths; Ella Guest; Diana Harcourt; Mairead Murphy; Sandra Hollinghurst; Chris Salisbury; Jill Carlton; Jackie Elliott; Donna Rowen; Anqi Gao; Andrew Price; David Beard; Agnieszka Lemanska; Tao Chen; David P. Dearnaley; Rajesh Jena; Matthew Sydes; Sara Faithfull; A. E. Ades; Daphne Kounali; Guobing Lu; Ines Rombach; Alastair Gray; Crispin Jenkinson; Oliver Rivero-Arias; Patricia Holch; Marie Holmes; Zoe Rodgers; Sarah Dickinson; Beverly Clayton; Susan Davidson; Jacqui Routledge; Julia Glennon; Ann M. Henry; Kevin Franks; Galina Velikova; Roma Maguire; Lisa McCann; Teresa Young; Jo Armes; Jenny Harris; Christine Miaskowski; Grigorios Kotronoulas; Morven Miller; Emma Ream; Elizabeth Patiraki; Alexander Geiger; Geir V. Berg; Adrian Flowerday; Peter Donnan; Paul McCrone; Kathi Apostolidis; Patricia Fox; Eileen Furlong; Nora Kearney; Chris Gibbons; Felix Fischer; Chris Gibbons; Joel Coste; Jose Valderas Martinez; Matthias Rose; Alain Leplege; Sarah Shingler; Natalie Aldhouse; Tamara Al-Zubeidi; Andrew Trigg; Helen Kitchen; Antoinette Davey; Ian Porter; Colin Green; Jose M. Valderas; Joanna Coast; Sarah Smith; Jolijn Hendriks; Nick Black; Koonal Shah; Oliver Rivero-Arias; Juan-Manuel Ramos-Goni; Simone Kreimeier; Mike Herdman; Nancy Devlin; Aureliano Paolo Finch; John E. Brazier; Clara Mukuria; Bernarda Zamora; David Parkin; Yan Feng; Andrew Bateman; Mike Herdman; Nancy Devlin; Thomas Patton; Nils Gutacker; Koonal Shah

doi:10.1186/s12955-017-0757-y

Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research

Galina Velikova, Jose M. Valderas, Caroline Potter, Laurie Batchelder, Christine A’Court, Matthew Baker, Jennifer Bostock, Angela Coulter, Ray Fitzpatrick, Julien Forder, Diane Fox, Louise Geneen, Elizabeth Gibbons, Crispin Jenkinson, Karen Jones, Laura Kelly, Michele Peters, Brendan Mulhern, Alexander Labeit, Donna RowenKeith Meadows, Jackie Elliott, John E. Brazier, Emma Knowles, Anju Keetharuth, John E. Brazier, Janice Connell, Jill Carlton, Lizzie Taylor Buck, Thomas Ricketts, Michael Barkham, Pushpendra Goswami, Sam Salek, Tatyana Ionova, Esther Oliva, Adele K. Fielding, Marina Karakantza, Saad Al-Ismail, Graham P. Collins, Stewart McConnell, Catherine Langton, Daniel M. Jennings, Roger Else, Jonathan Kell, Helen Ward, Sophie Day, Elizabeth Lumley, Patrick Phillips, Rosie Duncan, Helen Buckley-Woods, Ahmed Aber, Gerogina Jones, Jonathan Michaels, Ian Porter, Jaheeda Gangannagaripalli, Antoinette Davey, Ignacio Ricci-Cabello, Kirstie Haywood, Stine Thestrup Hansen, Jose Valderas, Deb Roberts, Anil Gumber, Bélène Podmore, Andrew Hutchings, Jan van der Meulen, Ajay Aggarwal, Sujith Konan, Andrew Price, William Jackson, Nick Bottomley, Michael Philiips, Toby Knightley-Day, David Beard, Elizabeth Gibbons, Ray Fitzpatrick, Joanne Greenhalgh, Kate Gooding, Elizabeth Gibbons, Chema Valderas, Judy Wright, Sonia Dalkin, David Meads, Nick Black, Carol Fawkes, Robert Froud, Dawn Carnes, Andrew Price, Jonathan Cook, Helen Dakin, James Smith, Sujin Kang, David Beard, Catrin Griffiths, Ella Guest, Diana Harcourt, Mairead Murphy, Sandra Hollinghurst, Chris Salisbury, Jill Carlton, Jackie Elliott, Donna Rowen, Anqi Gao, Andrew Price, David Beard, Agnieszka Lemanska, Tao Chen, David P. Dearnaley, Rajesh Jena, Matthew Sydes, Sara Faithfull, A. E. Ades, Daphne Kounali, Guobing Lu, Ines Rombach, Alastair Gray, Crispin Jenkinson, Oliver Rivero-Arias, Patricia Holch, Marie Holmes, Zoe Rodgers, Sarah Dickinson, Beverly Clayton, Susan Davidson, Jacqui Routledge, Julia Glennon, Ann M. Henry, Kevin Franks, Galina Velikova, Roma Maguire, Lisa McCann, Teresa Young, Jo Armes, Jenny Harris, Christine Miaskowski, Grigorios Kotronoulas, Morven Miller, Emma Ream, Elizabeth Patiraki, Alexander Geiger, Geir V. Berg, Adrian Flowerday, Peter Donnan, Paul McCrone, Kathi Apostolidis, Patricia Fox, Eileen Furlong, Nora Kearney, Chris Gibbons, Felix Fischer, Chris Gibbons, Joel Coste, Jose Valderas Martinez, Matthias Rose, Alain Leplege, Sarah Shingler, Natalie Aldhouse, Tamara Al-Zubeidi, Andrew Trigg, Helen Kitchen, Antoinette Davey, Ian Porter, Colin Green, Jose M. Valderas, Joanna Coast, Sarah Smith, Jolijn Hendriks, Nick Black, Koonal Shah, Oliver Rivero-Arias, Juan-Manuel Ramos-Goni, Simone Kreimeier, Mike Herdman, Nancy Devlin, Aureliano Paolo Finch, John E. Brazier, Clara Mukuria, Bernarda Zamora, David Parkin, Yan Feng, Andrew Bateman, Mike Herdman, Nancy Devlin, Thomas Patton, Nils Gutacker, Koonal Shah

Health Economics and Health Technology Assessment

Research output: Contribution to Journal › Article › Academic › peer-review

Abstract

The proceedings contain 36 papers. The topics discussed include: using patient reported outcome measures (PROMs) in cancer care; validation of the long-term conditions questionnaire (LTCQ) in a diverse sample of health and social care users in England; the national institutes of health patient-reported outcomes measurement information system (PROMIS): a view from the UK; constructing and validating the short recovering quality of life (ReQoL) measure for use in a mental health population; developing preference based measures for diabetes for calculating QALYs: DHP-3D and DHP-5D; development of a novel patient reported outcome measure for patients with haematological malignancy: a qualitative study; and examining the relevance of PROMs to patients: a review of qualitative data capturing which HRQoL domains are important to patients.

Original language	English
Pages (from-to)	185
Number of pages	1
Journal	Health and Quality of Life Outcomes
Volume	15
Issue number	S1
DOIs	https://doi.org/10.1186/s12955-017-0757-y
Publication status	Published - 5 Oct 2017

Funding

The study is funded by a grant from the EC: FP7-HEALTH-2013-INNOVATION-1 Grant Agreement Number 602289. Conclusions: Using Rasch analyses to develop the scores for DEM-QOL has given us important information about the location of each item on the continuum. We have linked this information to MID statistics to begin to develop a meaningful understanding of change. This research was commissioned and funded by the Department of Health Policy Research Programme (Using Patient Reported Outcome Measures to Assess Quality of Life in Dementia, 0700071). The views expressed in this publication are those of the authors and not necessarily those of the Department of Health. The Patient-Reported Outcomes Measurement Information System (PROMIS) is a system for the measurement of patient reported outcomes whose development was funded by the US National Institute for Health. Its methodological rigor, scope, ambition and flexibility (including both standardized short forms and computerized adaptive administration) has turned it into one of the standards of PROMs measurement, although its use is still very limited outside the US. The presentation will provide an overview of the rationale for the development of the system, the methods employed in its development and the resulting scales and short forms and key characteristics, including Assessment Centre, the online platform supporting the use of PROMIs scales. Current applications and use of PROMIS in the UK will be reviewed and the potential for its application to support the management of patients in the NHS will be considered.

Funders	Funder number
Department of Health Policy Research Programme	0700071
FP7-HEALTH-2013-INNOVATION-1
PROMIS
US National Institute for Health
Seventh Framework Programme	602289
European Commission

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1186/s12955-017-0757-y

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Velikova, G., Valderas, J. M., Potter, C., Batchelder, L., A’Court, C., Baker, M., Bostock, J., Coulter, A., Fitzpatrick, R., Forder, J., Fox, D., Geneen, L., Gibbons, E., Jenkinson, C., Jones, K., Kelly, L., Peters, M., Mulhern, B., Labeit, A., ... Shah, K. (2017). Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research. Health and Quality of Life Outcomes, 15(S1), 185. https://doi.org/10.1186/s12955-017-0757-y

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title = "Proceedings of Patient Reported Outcome Measure{\textquoteright}s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research",

abstract = "The proceedings contain 36 papers. The topics discussed include: using patient reported outcome measures (PROMs) in cancer care; validation of the long-term conditions questionnaire (LTCQ) in a diverse sample of health and social care users in England; the national institutes of health patient-reported outcomes measurement information system (PROMIS): a view from the UK; constructing and validating the short recovering quality of life (ReQoL) measure for use in a mental health population; developing preference based measures for diabetes for calculating QALYs: DHP-3D and DHP-5D; development of a novel patient reported outcome measure for patients with haematological malignancy: a qualitative study; and examining the relevance of PROMs to patients: a review of qualitative data capturing which HRQoL domains are important to patients.",

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year = "2017",

month = oct,

day = "5",

doi = "10.1186/s12955-017-0757-y",

language = "English",

volume = "15",

pages = "185",

journal = "Health and Quality of Life Outcomes",

issn = "1477-7525",

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Velikova, G, Valderas, JM, Potter, C, Batchelder, L, A’Court, C, Baker, M, Bostock, J, Coulter, A, Fitzpatrick, R, Forder, J, Fox, D, Geneen, L, Gibbons, E, Jenkinson, C, Jones, K, Kelly, L, Peters, M, Mulhern, B, Labeit, A, Rowen, D, Meadows, K, Elliott, J, Brazier, JE, Knowles, E, Keetharuth, A, Brazier, JE, Connell, J, Carlton, J, Buck, LT, Ricketts, T, Barkham, M, Goswami, P, Salek, S, Ionova, T, Oliva, E, Fielding, AK, Karakantza, M, Al-Ismail, S, Collins, GP, McConnell, S, Langton, C, Jennings, DM, Else, R, Kell, J, Ward, H, Day, S, Lumley, E, Phillips, P, Duncan, R, Buckley-Woods, H, Aber, A, Jones, G, Michaels, J, Porter, I, Gangannagaripalli, J, Davey, A, Ricci-Cabello, I, Haywood, K, Hansen, ST, Valderas, J, Roberts, D, Gumber, A, Podmore, B, Hutchings, A, van der Meulen, J, Aggarwal, A, Konan, S, Price, A, Jackson, W, Bottomley, N, Philiips, M, Knightley-Day, T, Beard, D, Gibbons, E, Fitzpatrick, R, Greenhalgh, J, Gooding, K, Gibbons, E, Valderas, C, Wright, J, Dalkin, S, Meads, D, Black, N, Fawkes, C, Froud, R, Carnes, D, Price, A, Cook, J, Dakin, H, Smith, J, Kang, S, Beard, D, Griffiths, C, Guest, E, Harcourt, D, Murphy, M, Hollinghurst, S, Salisbury, C, Carlton, J, Elliott, J, Rowen, D, Gao, A, Price, A, Beard, D, Lemanska, A, Chen, T, Dearnaley, DP, Jena, R, Sydes, M, Faithfull, S, Ades, AE, Kounali, D, Lu, G, Rombach, I, Gray, A, Jenkinson, C, Rivero-Arias, O, Holch, P, Holmes, M, Rodgers, Z, Dickinson, S, Clayton, B, Davidson, S, Routledge, J, Glennon, J, Henry, AM, Franks, K, Velikova, G, Maguire, R, McCann, L, Young, T, Armes, J, Harris, J, Miaskowski, C, Kotronoulas, G, Miller, M, Ream, E, Patiraki, E, Geiger, A, Berg, GV, Flowerday, A, Donnan, P, McCrone, P, Apostolidis, K, Fox, P, Furlong, E, Kearney, N, Gibbons, C, Fischer, F, Gibbons, C, Coste, J, Martinez, JV, Rose, M, Leplege, A, Shingler, S, Aldhouse, N, Al-Zubeidi, T, Trigg, A, Kitchen, H, Davey, A, Porter, I, Green, C, Valderas, JM, Coast, J, Smith, S, Hendriks, J, Black, N, Shah, K, Rivero-Arias, O, Ramos-Goni, J-M, Kreimeier, S, Herdman, M, Devlin, N, Finch, AP, Brazier, JE, Mukuria, C, Zamora, B, Parkin, D, Feng, Y, Bateman, A, Herdman, M, Devlin, N, Patton, T, Gutacker, N & Shah, K 2017, 'Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research', Health and Quality of Life Outcomes, vol. 15, no. S1, pp. 185. https://doi.org/10.1186/s12955-017-0757-y

TY - JOUR

T1 - Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research

AU - Velikova, Galina

AU - Valderas, Jose M.

AU - Potter, Caroline

AU - Batchelder, Laurie

AU - A’Court, Christine

AU - Baker, Matthew

AU - Bostock, Jennifer

AU - Coulter, Angela

AU - Fitzpatrick, Ray

AU - Forder, Julien

AU - Fox, Diane

AU - Geneen, Louise

AU - Gibbons, Elizabeth

AU - Jenkinson, Crispin

AU - Jones, Karen

AU - Kelly, Laura

AU - Peters, Michele

AU - Mulhern, Brendan

AU - Labeit, Alexander

AU - Rowen, Donna

AU - Meadows, Keith

AU - Elliott, Jackie

AU - Brazier, John E.

AU - Knowles, Emma

AU - Keetharuth, Anju

AU - Brazier, John E.

AU - Connell, Janice

AU - Carlton, Jill

AU - Buck, Lizzie Taylor

AU - Ricketts, Thomas

AU - Barkham, Michael

AU - Goswami, Pushpendra

AU - Salek, Sam

AU - Ionova, Tatyana

AU - Oliva, Esther

AU - Fielding, Adele K.

AU - Karakantza, Marina

AU - Al-Ismail, Saad

AU - Collins, Graham P.

AU - McConnell, Stewart

AU - Langton, Catherine

AU - Jennings, Daniel M.

AU - Else, Roger

AU - Kell, Jonathan

AU - Ward, Helen

AU - Day, Sophie

AU - Lumley, Elizabeth

AU - Phillips, Patrick

AU - Duncan, Rosie

AU - Buckley-Woods, Helen

AU - Aber, Ahmed

AU - Jones, Gerogina

AU - Michaels, Jonathan

AU - Porter, Ian

AU - Gangannagaripalli, Jaheeda

AU - Davey, Antoinette

AU - Ricci-Cabello, Ignacio

AU - Haywood, Kirstie

AU - Hansen, Stine Thestrup

AU - Valderas, Jose

AU - Roberts, Deb

AU - Gumber, Anil

AU - Podmore, Bélène

AU - Hutchings, Andrew

AU - van der Meulen, Jan

AU - Aggarwal, Ajay

AU - Konan, Sujith

AU - Price, Andrew

AU - Jackson, William

AU - Bottomley, Nick

AU - Philiips, Michael

AU - Knightley-Day, Toby

AU - Beard, David

AU - Gibbons, Elizabeth

AU - Fitzpatrick, Ray

AU - Greenhalgh, Joanne

AU - Gooding, Kate

AU - Gibbons, Elizabeth

AU - Valderas, Chema

AU - Wright, Judy

AU - Dalkin, Sonia

AU - Meads, David

AU - Black, Nick

AU - Fawkes, Carol

AU - Froud, Robert

AU - Carnes, Dawn

AU - Price, Andrew

AU - Cook, Jonathan

AU - Dakin, Helen

AU - Smith, James

AU - Kang, Sujin

AU - Beard, David

AU - Griffiths, Catrin

AU - Guest, Ella

AU - Harcourt, Diana

AU - Murphy, Mairead

AU - Hollinghurst, Sandra

AU - Salisbury, Chris

AU - Carlton, Jill

AU - Elliott, Jackie

AU - Rowen, Donna

AU - Gao, Anqi

AU - Price, Andrew

AU - Beard, David

AU - Lemanska, Agnieszka

AU - Chen, Tao

AU - Dearnaley, David P.

AU - Jena, Rajesh

AU - Sydes, Matthew

AU - Faithfull, Sara

AU - Ades, A. E.

AU - Kounali, Daphne

AU - Lu, Guobing

AU - Rombach, Ines

AU - Gray, Alastair

AU - Jenkinson, Crispin

AU - Rivero-Arias, Oliver

AU - Holch, Patricia

AU - Holmes, Marie

AU - Rodgers, Zoe

AU - Dickinson, Sarah

AU - Clayton, Beverly

AU - Davidson, Susan

AU - Routledge, Jacqui

AU - Glennon, Julia

AU - Henry, Ann M.

AU - Franks, Kevin

AU - Velikova, Galina

AU - Maguire, Roma

AU - McCann, Lisa

AU - Young, Teresa

AU - Armes, Jo

AU - Harris, Jenny

AU - Miaskowski, Christine

AU - Kotronoulas, Grigorios

AU - Miller, Morven

AU - Ream, Emma

AU - Patiraki, Elizabeth

AU - Geiger, Alexander

AU - Berg, Geir V.

AU - Flowerday, Adrian

AU - Donnan, Peter

AU - McCrone, Paul

AU - Apostolidis, Kathi

AU - Fox, Patricia

AU - Furlong, Eileen

AU - Kearney, Nora

AU - Gibbons, Chris

AU - Fischer, Felix

AU - Gibbons, Chris

AU - Coste, Joel

AU - Martinez, Jose Valderas

AU - Rose, Matthias

AU - Leplege, Alain

AU - Shingler, Sarah

AU - Aldhouse, Natalie

AU - Al-Zubeidi, Tamara

AU - Trigg, Andrew

AU - Kitchen, Helen

AU - Davey, Antoinette

AU - Porter, Ian

AU - Green, Colin

AU - Valderas, Jose M.

AU - Coast, Joanna

AU - Smith, Sarah

AU - Hendriks, Jolijn

AU - Black, Nick

AU - Shah, Koonal

AU - Rivero-Arias, Oliver

AU - Ramos-Goni, Juan-Manuel

AU - Kreimeier, Simone

AU - Herdman, Mike

AU - Devlin, Nancy

AU - Finch, Aureliano Paolo

AU - Brazier, John E.

AU - Mukuria, Clara

AU - Zamora, Bernarda

AU - Parkin, David

AU - Feng, Yan

AU - Bateman, Andrew

AU - Herdman, Mike

AU - Devlin, Nancy

AU - Patton, Thomas

AU - Gutacker, Nils

AU - Shah, Koonal

PY - 2017/10/5

Y1 - 2017/10/5

N2 - The proceedings contain 36 papers. The topics discussed include: using patient reported outcome measures (PROMs) in cancer care; validation of the long-term conditions questionnaire (LTCQ) in a diverse sample of health and social care users in England; the national institutes of health patient-reported outcomes measurement information system (PROMIS): a view from the UK; constructing and validating the short recovering quality of life (ReQoL) measure for use in a mental health population; developing preference based measures for diabetes for calculating QALYs: DHP-3D and DHP-5D; development of a novel patient reported outcome measure for patients with haematological malignancy: a qualitative study; and examining the relevance of PROMs to patients: a review of qualitative data capturing which HRQoL domains are important to patients.

AB - The proceedings contain 36 papers. The topics discussed include: using patient reported outcome measures (PROMs) in cancer care; validation of the long-term conditions questionnaire (LTCQ) in a diverse sample of health and social care users in England; the national institutes of health patient-reported outcomes measurement information system (PROMIS): a view from the UK; constructing and validating the short recovering quality of life (ReQoL) measure for use in a mental health population; developing preference based measures for diabetes for calculating QALYs: DHP-3D and DHP-5D; development of a novel patient reported outcome measure for patients with haematological malignancy: a qualitative study; and examining the relevance of PROMs to patients: a review of qualitative data capturing which HRQoL domains are important to patients.

UR - http://www.scopus.com/inward/record.url?scp=85057402256&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85057402256&partnerID=8YFLogxK

U2 - 10.1186/s12955-017-0757-y

DO - 10.1186/s12955-017-0757-y

M3 - Article

SN - 1477-7525

VL - 15

SP - 185

JO - Health and Quality of Life Outcomes

JF - Health and Quality of Life Outcomes

IS - S1

ER -

Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research

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