Provided support, caregiver burden and well-being in partners of persons with spinal cord injury 5 years after discharge from first inpatient rehabilitation

Eline W.M. Scholten, Anneroos Kieftenbelt, Chantal F. Hillebregt, Sonja De Groot, Marjolijn Ketelaar, Johanna M.A. Visser-Meily, Marcel W.M. Post*

*Corresponding author for this work

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Study design: Cross-sectional study. Objectives: To describe type and regularity of support given by partners for individuals with paraplegia versus tetraplegia 5 years after discharge from first inpatient rehabilitation; to describe perceived caregiver burden, mental health and life satisfaction among partners; and to analyse determinants of perceived burden and the partner's mental health and life satisfaction. Setting: The Netherlands. Methods: Participants were partners of persons with spinal cord injury (SCI) 5 years after discharge from first inpatient rehabilitation (N = 67). Participants completed a self-report questionnaire. Provided support was assessed with an existing scale consisting of 25 activities for which partners could indicate how often they provide support to the patient. Caregiver burden was assessed with the Caregiver Strain Index. Mental health was measured with the Short-Form Health Survey 36 (mental health subscale), and life satisfaction was measured with the Life Satisfaction Questionnaire. Results: Five years after inpatient rehabilitation, partners provided support with a large variety of activities. How often and in which activities partners provided support was associated with lesion level. About 43% of the partners experienced high levels of caregiver burden. Provided support was related to perceived burden (r S = 0.58) and life satisfaction (r S =-0.24), and burden was negatively related to mental health (r S =-0.47) and life satisfaction (r S =-0.67). Conclusions: High levels of perceived burden among partners and the associations between higher burden with lower well-being show the importance to prevent caregiver overload in partners of individuals with SCI. Monitoring burden during regular rehabilitation visits may help to early detect burden.

Original languageEnglish
Pages (from-to)436-446
Number of pages11
JournalSpinal Cord
Volume56
Issue number5
DOIs
Publication statusPublished - 1 May 2018
Externally publishedYes

Fingerprint

Dive into the research topics of 'Provided support, caregiver burden and well-being in partners of persons with spinal cord injury 5 years after discharge from first inpatient rehabilitation'. Together they form a unique fingerprint.

Cite this