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Publics and Biobanks: Pan European diversity and the Challenge of Responsible Innovation

  • G. Gaskell
  • , H. Gottweis
  • , J. Starkbaum
  • , M.M. Berber
  • , J.E.W. Broerse
  • , U. Gottweis
  • , A. Hobbs
  • , I. Helen
  • , M. Pashou
  • , K. Shell
  • , A. Soulier

    Research output: Contribution to JournalArticleAcademicpeer-review

    Abstract

    This article examines public perceptions of biobanks in Europe using a multi-method approach combining quantitative and qualitative data. It is shown that public support for biobanks in Europe is variable and dependent on a range of interconnected factors: people's engagement with biobanks; concerns about privacy and data security, and trust in the socio-political system, key actors and institutions involved in biobanks. We argue that the biobank community needs to acknowledge the impact of these factors if they are to successfully develop and integrate biobanks at a pan-European level. © 2013 Macmillan Publishers Limited. All rights reserved.
    Original languageEnglish
    JournalEuropean Journal of Human Genetics
    Volume21
    DOIs
    Publication statusPublished - 2013

    UN SDGs

    This output contributes to the following UN Sustainable Development Goals (SDGs)

    1. SDG 16 - Peace, Justice and Strong Institutions
      SDG 16 Peace, Justice and Strong Institutions

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