Research agendas involving patients: Factors that facilitate or impede translation of patients’ perspectives in programming and implementation

C.A.C.M. Pittens, J.E. Elberse, M.A. Visse, T.A. Abma, J.E.W. Broerse

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Patients are increasingly involved in agenda setting in health research policy, but little is known about whether or not patients' topics are translated into a funding programme and taken up by researchers. A qualitative evaluation of nine multi-stakeholder agenda-setting projects in the Netherlands was conducted. Document study and 54 semi-structured interviews with stakeholders were undertaken. Three strategies for the translation of research agendas into research programmes were identified: first, one-on-one translation; second, agendas were used to adapt general policies; and third, no translation. A number of factors, facilitating or impeding this translation, were identified, relating to the context or the process of programming and implementation. Context appeared to be crucial: positive attitudes towards patient involvement, good relations between stakeholders and supportive characteristics of organizations. Patient involvement was rarely sustained during programming and implementation. These insights contribute to more effective procedures for programming and implementing research agendas.
Original languageEnglish
Pages (from-to)809-820
JournalScience & Public Policy
Volume41
Issue number6
DOIs
Publication statusPublished - 2014

Fingerprint Dive into the research topics of 'Research agendas involving patients: Factors that facilitate or impede translation of patients’ perspectives in programming and implementation'. Together they form a unique fingerprint.

Cite this