Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives

Jacqueline van Tuyll van Serooskerken; Agnes Willemen; Anne de la Croix; Petri J.C.M. Embregts; Carlo Schuengel

doi:10.3390/disabilities2020024

Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives

Jacqueline van Tuyll van Serooskerken^*
, Agnes Willemen
, Anne de la Croix
, Petri J.C.M. Embregts
, Carlo Schuengel

^*Corresponding author for this work

Research output: Contribution to Journal › Article › Academic › peer-review

Abstract

Background: The fulfilment of basic psychological needs (BPNs) is seen as an integral part of human self-determination, subjective wellbeing, and overall quality of life. However, the meaning of these psychological constructs for individuals with the most extensive support needs remains elusive.

Methods: Primary relatives of nine people diagnosed with severe or profound intellectual and multiple disabilities were interviewed about their perceptions of autonomy, competence, and relatedness regarding their family member with complex care needs, and about the ways in which they tried to support their family member in fulfilling specific BPNs. The interview analysis followed a grounded theory with the sensitizing concepts approach.

Results: The relatives assigned important meaning to the BPNs, providing insights into their subtle nature, their implicit drivers, and how they were experienced. The relatives also identified serious challenges in detecting, clarifying, and creating opportunities for BPNs.

Conclusions: The themes in the relatives’ perspectives can be summarized into a conceptual framework that may contribute to better mutual understanding between people with complex care needs, their relatives, and healthcare providers.

Original language	English
Pages (from-to)	330-347
Number of pages	18
Journal	Disabilities
Volume	2
Issue number	2
Early online date	10 Jun 2022
DOIs	https://doi.org/10.3390/disabilities2020024
Publication status	Published - Jun 2022

Funding

The authors would like to express their sincere gratitude to the relatives and family members with complex support needs who participated in this study. Furthermore, recruitment was supported by ’s Heeren Loo, EMB Nederland, and Per Saldo, three Dutch care and client advocacy organizations that support people with disabilities and their caregivers. The authors would like to thank these organizations sincerely for their time and effort in recruiting relatives. This research was funded by The Netherlands Organisation for Health Research and Development (ZonMw) Nationaal Programma Gewoon Bijzonder, grant number 845004005. Partial funding (i.e., co-financing) for this research was provided by Stichting Wetenschappelijk Onderzoek of ’s Heeren Loo, The Netherlands.

Funders	Funder number
Dutch care and client advocacy organizations
Stichting Wetenschappelijk Onderzoek of ’s Heeren Loo
Per Saldo
UK Research and Innovation	103452
ZonMw	845004005

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

Keywords

people with extensive and complex support needs; primary relatives; basic psychological needs; self-determination; grounded theory; sensitizing concepts

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10.3390/disabilities2020024Licence: CC BY

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Cite this

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title = "Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives{\textquoteright} Perspectives",

abstract = "Background: The fulfilment of basic psychological needs (BPNs) is seen as an integral part of human self-determination, subjective wellbeing, and overall quality of life. However, the meaning of these psychological constructs for individuals with the most extensive support needs remains elusive. Methods: Primary relatives of nine people diagnosed with severe or profound intellectual and multiple disabilities were interviewed about their perceptions of autonomy, competence, and relatedness regarding their family member with complex care needs, and about the ways in which they tried to support their family member in fulfilling specific BPNs. The interview analysis followed a grounded theory with the sensitizing concepts approach. Results: The relatives assigned important meaning to the BPNs, providing insights into their subtle nature, their implicit drivers, and how they were experienced. The relatives also identified serious challenges in detecting, clarifying, and creating opportunities for BPNs. Conclusions: The themes in the relatives{\textquoteright} perspectives can be summarized into a conceptual framework that may contribute to better mutual understanding between people with complex care needs, their relatives, and healthcare providers.",

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year = "2022",

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doi = "10.3390/disabilities2020024",

language = "English",

volume = "2",

pages = "330--347",

journal = "Disabilities",

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Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives. / van Tuyll van Serooskerken, Jacqueline; Willemen, Agnes; de la Croix, Anne et al.
In: Disabilities, Vol. 2, No. 2, 06.2022, p. 330-347.

Research output: Contribution to Journal › Article › Academic › peer-review

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AU - de la Croix, Anne

AU - Embregts, Petri J.C.M.

AU - Schuengel, Carlo

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Satisfying Basic Psychological Needs among People with Complex Support Needs: A Self-Determination Theory-Guided Analysis of Primary Relatives’ Perspectives

Abstract

Funding

UN SDGs

Keywords

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