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The economic costs of informal care: Estimates from a national cross-sectional survey in The Netherlands

  • Saif Elayan*
  • , Viola Angelini
  • , Erik Buskens
  • , Alice de Boer
  • *Corresponding author for this work

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Faced with an unprecedented demand for long-term care, European health care systems are moving towards mixed care models, where the welfare state and informal caregivers share care responsibilities. While informal care is often viewed as a means of alleviating pressure on public care, it comes with significant economic costs for caregivers, their employers, and society at large. This study uses nationally representative data to estimate the total direct (informal care time and out-of-pocket costs) and indirect (productivity) economic costs of informal care in the Netherlands in 2019. Informal care time costs are estimated using the opportunity cost and the proxy good methods. Indirect costs are estimated using the human capital and friction cost approaches. Our results reveal the considerable annual societal cost of informal care in the Netherlands, ranging between €17.5 billion and €30.1 billion, depending on the valuation approach. These costs are equivalent to 2.15% and 3.71% of Dutch GDP in 2019, comparable to the public expenditure on long-term care in that year. Female caregivers account for slightly more than half (53%–57%) of the total costs. Around 57%–88% of these costs are in the form of informal care time. The main driver of indirect costs is the temporary cessation of work, which comprises 12%–17% of the total costs. Findings corroborate that substantial resources, yet thus far largely disregarded, are spent on informal care even in a country with a relatively generous public long-term care system.

Original languageEnglish
Pages (from-to)1311-1331
Number of pages21
JournalEuropean Journal of Health Economics
Volume25
Issue number8
Early online date31 Jan 2024
DOIs
Publication statusPublished - Nov 2024

Bibliographical note

Publisher Copyright:
© The Author(s) 2024.

Funding

This work is funded by the European Union\u2019s Horizon 2020 research and innovation programme under the Marie Sk\u0142odowska-Curie Innovative Training Network (H2020-MSCA-ITN-2018), grant agreement No.814072. The funders had no role in study design, data collection and analysis, the decision to publish, or the preparation of the manuscript. The authors have no competing interests to declare that are relevant to the content of this article. According to Dutch law (Wet medisch wetenschappelijk Onderzoek met mensen), formal approval (e.g., from a medical ethics committee) was not required as this study involved secondary analysis of anonymous data. Data collection strictly followed the national standard and the Statistics Netherlands Act 2003. At no time did the data set contain direct identifiers. The data that support the findings of this study are available from the Netherlands Institute for Social Research. Restrictions apply to the availability of these data, which were used under license for this study. Data are available at https://doi.org/10.17026/dans-xzy-69n3 with the permission of the Netherlands Institute for Social Research.

FundersFunder number
Marie Skłodowska-Curie Innovative Training NetworkH2020-MSCA-ITN-2018
Horizon 2020 Framework Programme814072

    Keywords

    • Cost analysis
    • Economic costs of care
    • I11
    • I15
    • I18
    • Indirect costs
    • Informal care
    • J14
    • J22
    • Opportunity cost
    • Out-of-pocket expenses

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