Transparent Medical Data Systems

Dayana Spagnuelo, Gabriele Lenzini

Research output: Contribution to JournalArticleAcademicpeer-review

Abstract

Transparency is described as the quality to be open about policies and practices. It is intended to inform end users of what happens to their data. It promotes good quality of service and is believed to sustain people's demand for privacy. However, at least for medical data systems, a clear definition of the property is missing and there is no agreement on what requirements qualify it. We look into this problem. First we identify concepts that relate with transparency: openness, empowerment, auditability, availability, accountability, verifiability. We discuss them in Health Information Technology, so clarifying what transparency is. Then we elicit a list of requirements that indicate how transparency can be realised in modern medical data systems such as those managing electronic health records.
Original languageEnglish
JournalJournal of Medical Systems
Volume41
Issue number1
DOIs
Publication statusPublished - 1 Jan 2017

Fingerprint

Transparency
Health
Information technology
Quality of service
Availability

Keywords

  • Medical data systems
  • Requirements
  • Taxonomy
  • Transparency

Cite this

Spagnuelo, Dayana ; Lenzini, Gabriele. / Transparent Medical Data Systems. In: Journal of Medical Systems. 2017 ; Vol. 41, No. 1.
@article{d709b7f6c40b4924974105c68074c76e,
title = "Transparent Medical Data Systems",
abstract = "Transparency is described as the quality to be open about policies and practices. It is intended to inform end users of what happens to their data. It promotes good quality of service and is believed to sustain people's demand for privacy. However, at least for medical data systems, a clear definition of the property is missing and there is no agreement on what requirements qualify it. We look into this problem. First we identify concepts that relate with transparency: openness, empowerment, auditability, availability, accountability, verifiability. We discuss them in Health Information Technology, so clarifying what transparency is. Then we elicit a list of requirements that indicate how transparency can be realised in modern medical data systems such as those managing electronic health records.",
keywords = "Medical data systems, Requirements, Taxonomy, Transparency",
author = "Dayana Spagnuelo and Gabriele Lenzini",
year = "2017",
month = "1",
day = "1",
doi = "10.1007/s10916-016-0653-8",
language = "English",
volume = "41",
journal = "Journal of Medical Systems",
issn = "1573-689X",
publisher = "Springer_Verlag",
number = "1",

}

Transparent Medical Data Systems. / Spagnuelo, Dayana; Lenzini, Gabriele.

In: Journal of Medical Systems, Vol. 41, No. 1, 01.01.2017.

Research output: Contribution to JournalArticleAcademicpeer-review

TY - JOUR

T1 - Transparent Medical Data Systems

AU - Spagnuelo, Dayana

AU - Lenzini, Gabriele

PY - 2017/1/1

Y1 - 2017/1/1

N2 - Transparency is described as the quality to be open about policies and practices. It is intended to inform end users of what happens to their data. It promotes good quality of service and is believed to sustain people's demand for privacy. However, at least for medical data systems, a clear definition of the property is missing and there is no agreement on what requirements qualify it. We look into this problem. First we identify concepts that relate with transparency: openness, empowerment, auditability, availability, accountability, verifiability. We discuss them in Health Information Technology, so clarifying what transparency is. Then we elicit a list of requirements that indicate how transparency can be realised in modern medical data systems such as those managing electronic health records.

AB - Transparency is described as the quality to be open about policies and practices. It is intended to inform end users of what happens to their data. It promotes good quality of service and is believed to sustain people's demand for privacy. However, at least for medical data systems, a clear definition of the property is missing and there is no agreement on what requirements qualify it. We look into this problem. First we identify concepts that relate with transparency: openness, empowerment, auditability, availability, accountability, verifiability. We discuss them in Health Information Technology, so clarifying what transparency is. Then we elicit a list of requirements that indicate how transparency can be realised in modern medical data systems such as those managing electronic health records.

KW - Medical data systems

KW - Requirements

KW - Taxonomy

KW - Transparency

UR - http://www.mendeley.com/research/transparent-medical-data-systems

U2 - 10.1007/s10916-016-0653-8

DO - 10.1007/s10916-016-0653-8

M3 - Article

VL - 41

JO - Journal of Medical Systems

JF - Journal of Medical Systems

SN - 1573-689X

IS - 1

ER -