Abstract
In pediatric palliative care parents are existentially affected in the end of life of their son or daughter. In their anguish and loneliness they have strong need for connectedness; first of all with their child but also with the health care professionals involved. Many parents connect not only physically to their child but also in expressions of a certain spirituality. This spirituality can be observed in special events that have meaning to parents; also in the mourning process. They speak of events that are considered as not coincidental; for example in experiences of the senses. A momentary experience of a meaningful event, connects them to their deceased child in a reality transcending way. This type of spirituality is fragile as it is not necessarily part of a meaning-system or worldview, nor is their a community to share these experiences. In vulnerable situations a transcending motion can be part of people's interpretive reality, indicating the presence of a fragile spirituality
Original language | English |
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Qualification | Dr. |
Awarding Institution |
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Supervisors/Advisors |
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Award date | 18 Nov 2021 |
Place of Publication | Rotterdam |
Publisher | |
Print ISBNs | 9789463616034 |
Publication status | Published - 18 Nov 2021 |
Keywords
- transcendence, spirituality, continuous bonds, palliative care, pediatrics, meaning,